Helpful ideas about diet, treatment, moving forward, and life after getting surgery for treating ulcerative colitis.
Introduction: Tomorrow is the end of one era of my life, and the beginning of the next. I look back on these past 9 months and can’t believe everything that I’ve been through. Here is a walk through my journey with UC….starting with diagnosis through the first surgery: To say this year of my life has been like a roller coaster would be an understatement.… Read More »Re-Telling my story on the eve of my Takedown Surgery!
My Son Has Ulcerative Colitis. Background: My son was diagnosed at 10 years old in the 4th grade. At his worse, he was taking 26 pills a day, plus a probiotic shake and would end his nights with an enema. He was on 40 mg of Prednisone for a year before surgery. In May of 2011 he had a total colectomy and J-pouch created. In… Read More »What a Difference a Year Makes
My Ulcerative Colitis Story: I once read that ‘what doesn’t kill you, only makes you stronger.’ However I never really found the true meaning behind it until this past year. When I think back on my childhood, I am faced with an overflow of happy memories. What I remember doesn’t consist of stomachaches and worrisome thoughts, but instead a healthy child with a full of… Read More »What Doesn’t Kill You, Only Makes You Stronger
I was diagnosed with Ulcerative Colitis in my early 20’s. I thought I would be the first one to beat it, using exercise, diet, yoga and meditation. I was on prednisone without ever stopping for 11 years. I had several resections and tried 6MP with no success. In fact, I had blood transfusions on the day of my wedding and still went through with the… Read More »I Am WHOLE Again
I have to change the bag every 3-5 days depending on if I’ve been in the water or not or done some more strenuous activities within the days prior. The only painful part is taking the tape off at the beginning, especially when you’re ripping the hair out…ouch! It’s impossible to judge when you’re not going to have output but surprisingly I haven’t had much… Read More »Colostomy Bag Change