Roxy, I believe I have posted 2 years ago before. Here’s an update!
Mild UP is back, but mild symptoms fading away on its own after 2 weeks. Nevertheless going Dr to get meds up my butt since I got a colonoscopy yesterday.
Full time mother, and although busy, I love my baby to bits!
Proctitis. Very mild.
No pain, no D, no C, some mucus, minimal to no blood.
1-2 BM a day, well formed or sometimes soft.
When proctitis flare, I will fart wet gas, more mucus and seldom blood.
I had 1 mini flare up every 2 years. And I have to add all these while I feel generally energetic and healthy, no D, no pain, and almost minimal blood.
2014, some mucus, lots of gas, minimal to no blood and no pain, no D. just minor urgency. (lasted few weeks)
First time treated with (sorry been a while i forgot the name) a pill that you put up your butt. Cleared up immediately, gas & mucus went away and been normal since!
2016 again, mucus, gas, no pain, just wet fart. (lasted few weeks)
I got pregnant the same time and opted no med, and all symptoms disappeared without a trace!! – this was when I first posted on this forum
2018 this time similar. mucus, gas, no pain, just wet fart with minimal blood. (i assume triggered by my period)
Been 2 weeks and symptoms almost cleared off on its own without meds, but since I had a colonoscopy yesterday, the Dr will see me tmr and give me meds to put up my butt again.
So overall, these 3 times are super mild, i mean compared to all the stories symptoms of others I read online. And apart from the couple of weeks of flare during the above 3 times, I eat whatever I want, junk, feeling really healthy, formed stools, no pain, no C, no D, no blood. Of course with this recent episode reminds me of UP is there, always there somehow though invisible. I decided to start eating healthy and anti-inflm foods from now.
I read many places if UP were to spread to full Ulcerative Colitis, its only 10% rate. Even my GI said that. “Over 90 percent of the those who have idiopathic proctitis never develop colitis higher up in the colon. ” But of course there are people with recurring colitis coming back online and more active on forums looking for answers so its hard to find an exact sample simply on forums. Or maybe people often in remission stop coming online to share their stories so its hard to gauge.
And also I read if UP do spread, MAJORITY does so within first 2 years of diagnosis.
So my question is, please shoot me with your positive stories of UP being in remission most of the time like me and minor mild symptoms. Please tell me UP or UC patients can live a long life! By long life, i mean of course this disease wont affect life expectancy. Or do you know anyone with UP or UC in their old age and still living well in remission?
Please make this a feel good forum! Thanks for support!
Roxy’s Current Medications:
Anti-inflm foods, Vit D, probiotics
Going to add tumeric, B complex, and fish oil soon
written by Roxy
submitted in the colitis venting area