Just found out I most likely have C Diff on top of UC. Anyone ever beat C Diff successfully after being on Prednisone for months? Doc says I’m probably gonna lose my colon.
The Rest of the Colitis Story:
I just found out that I have a C Diff infection on top of my UC thanks to my crappy ex doctor feeding me high doses of Prednisone for so long. My new doctor said that people in my situation almost always end up having their colon removed because it is really hard to get rid of C Diff after you’ve been on Prednisone so long. So I got my stupid ex doctor to thank for that. He should’ve known their was a reason I wasn’t responding to steroids after 3 months. I have to start a 21 day cycle of Flagyl once I get confirmation on the stool samples for C Diff. Just a word to the wise, my new doc told me that C Diff is hard to get a positive test when you’ve been on Prednisone because it will mask it. So if your on Prednisone and not responding well to it, it’s probably due to something else going on like C Diff. She is making me take 3 different stool samples to be tested because she’s pretty sure I have C Diff after doing a flex scope last Friday.
So here are some questions to those of you who have had C Diff or I guess any other infection.
1). I hear its almost impossible to get rid of after being on prednisone because prednisone lowers your immune system. Anyone reading this ever beat the C Diff?
2). What can I expect to feel like taking the antibiotic Flagyl? I heard it makes symptoms worse and I will feel nauseous.
3). I’ve also heard C Diff stays on everything, even washed underwear and the reason its so hard to get rid of is because people keep reinfecting themselves. Anyone with any advice about how to not reinfect themselves. For example, I will be bleaching my underwear and towels.
4). I’m tapering off prednisone right now and I will start taking Flagyl probably tomorrow, not a good combo. Anyone with experience?
5). Anyone ever heard of the poop transplant or even tried this? I’ve heard its pretty successful and my doc said I may need to do that.
I think that’s all I got right now. Thanks for reading, wish me luck.
Tapering off prednisone from 40mg, currently taking 15mg
Asacol, 3 pills 3 times a day
Florastor probiotics 3 pills a day
AMP Floracel, 9 pills a day
Hydrocortisone enemas nightly
Submitted by “Blake” in the Colitis Venting Area