Bleeding Bride

I’m 28 years old and was diagnosed with ulcerative colitis when I was 9.

I’ve been in and out of remission my entire life. It should be the happiest time of my life as i’m planning for my wedding and killer honeymoon in June but of course it’s caused a flair up.
I went in for a colonoscopy last week and since i was first diagnosed only the last 10 inches of my colon was ulcerated. But as of last week (the last time i was checked was only a year ago) half of my colon is diseased. None of my meds are working (asacol, canasa, prednisone) and my doctor wants to put me on immunosuppresants and the side effects sound awful!!
I just started feeling a LITTLE better taking probiotics daily. Has anyone heard of this 7-day brown rice diet? I found it at http://users.sa.chariot.net.au/~dna/IBD/index.htm I’m willing to try it if people are getting results!

Does anyone have suppliments to recommend to me, anything natural? I don’t want to be a bleeding, bloated bride :(

Medications Currently: 12 Asacol/day

Submitted via the online submital page under the “name”:  Bride-to-Be

 

Related Pages:

Natural Probiotics for Ulcerative Colitis

Information on the most popular diet used by followers of this site: the SCD diet

Another story about 3 months on the SCD diet

A Link to a Guide Book that shows you how to Start and be successful on the SCD Diet

VSL 3 High Potency Probiotic Capsules for Ulcerative Colitis
Nature’s Way Slippery Elm Bark 370 mg
Breaking the Vicious Cycle: Intestinal Health Through Diet
Accuflora- Probiotic Acidophilus Dietary Supplement

 

 




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9 Responses to Bleeding Bride

  1. Tiff February 28, 2011 at 5:08 pm #

    Hi! I am an uclerative colitis patient since the age of 12 and I am getting married this summer as well, I am 25. My suggestion is SCD!!! I have been on it since June and I am living so much better than I used. I was just like you, bloated, bleeding, running to the bathroom, unhealthy! SCD is the best thing that ever happened to me! I am doing fantasic! When I started I was on 11 prescription meds a day, now I am on two!!! Please try it and commit yourself to it, my caterer making me a seperate “SCD” plate at my wedding and we are having a buffet style dinner. Believe me it works and you will feel so much better!

    (I have only read on here of one person who did not find sucess with the SCD diet, I hope it works for you! Congrats!)

  2. Linda February 28, 2011 at 5:14 pm #

    Hello, I’m sorry you are having such a bad flare while trying to get ready for your wedding. i’m sure it really sucks! but, congrats on getting married though. as for supplements. i order the SCD Multivitamin which was created by the company Freeda and Elaine Gottshall(SCD Breaking the vicious cycle. i order them through amazon. it has absolutely no harmful added fillers and my son who has UC has been taking them for over 3 months now. he definitely got healthier and more energy since using them. have you thought about trying the SCDiet? a lot of people on this site use it and are doing great; my son included, he was diagnosed very young just like you….he is 6 and 1/2 years old now, but diagnosed with UC at 5. from what i know, being on a brown rice diet does more harm then good for UC. it is definitely healthier than white rice, but, still not good for sensitive intestines. if you are interested in buying the SCD book or the vitamins, just click on the amazon link from this website and it will take you there. Adam, the founder of this website let us know that clicking on links from here to make purchases will help support this site and other UC causes in general which is great! if you have any more questions, any one of us will be happy to help or give advice. we are all in this together, parents included(me) Linda.

  3. J February 28, 2011 at 6:18 pm #

    I have had great success with SCD and the probiotic VSL#3 in addition to Asacol. I hope this helps.

  4. Alex February 28, 2011 at 10:26 pm #

    I’ve used the Metagenics supplements: METAGEST, AZEO-PANGEN, INTESOL, ULTRA-INFLAMX 360. That’s what stopped my bleeding and diahrrea. Hope it works for you before the big day. Metagenics is the company that makes those supplements, I got them from the health food store.

    Congrats,

    Alex

  5. Steph March 1, 2011 at 3:23 pm #

    Hi there! I would also recommend trying SCD. I haven’t been on it long, only about a month, but I feel it’s working for me. If the probiotics helped you a little, you might be a good candidate for SCD since it is all about restoring balance in the gut bacteria.

    Aside from that, make sure you are taking time to relax! Stress is a UC trigger for many people so don’t forget to make time each day to do that thing that makes you happy and relaxed, whatever it may be. For me it’s dancing, skating and getting some sunshine.

    As for the wedding day, I’ve never had anything as important as a wedding ceremony, but I am a student, and when I know I have a test coming up, I have a ritual where I eat really light 2 days before. I just eat stuff like chicken soup or yogurt (ymmv, not everyone can handle dairy but I can) and ripe bananas. Really just enough to survive. Then the day of I don’t eat anything. I know that sounds like it sucks but that’s how I get through important days during a flare. I’m hoping on SCD I don’t have to do crazy stuff like that anymore!

    I have never heard of the brown rice diet so I can’t comment on that, but I do know that rice always made me more bloated. Good luck with whatever you decide to do!

  6. Anita Andersen March 1, 2011 at 10:31 pm #

    Congratulations on your Engagement, and good luck with your Wedding Plans. I too am starting to organise my big day. All very exciting!!!

    Firstly have not heard of brown rice diet…..but i would definitely avoid it. I know with my last flare, when I had brown rice, the next toilet trip was one of the worst, not sure if it was because there’s too much fibre, but it wasn’t pleasant. I think it’s ok when you’re in remission, but avoid it when healing.

    I have had Ulcerative Colitis since 2006, with flares every 6 months. 2009 I went a whole year without any symptoms, which was great. However it returned in 2010 with the worst relapse I had ever experienced. Couldn’t shake it off, and was bleeding from February til August. Ended up in Hospital, lost 10kg and had to have an iron infusion. I was initally diagnosed with left hand side colitis but it now affect my entire bowel.

    I was still bleeding when I left the hospital. So I looked to other alternative. Started Acupuncture and taking Chinese Herbs. One was called Sauserea & Cardamon apparently good for drying things up, good for digestion and bloating, and another herb called Biota tops, which was for the bleeding, was on that for less than a week when the bleeding finally stopped after 6 months.

    Things that are good for inflammation are Sweet Potato (I was having a little before each meal, not only as an anti-inflammatory but as a blood builder). Olive Oil is good, I drizzle that over vegetables. I make my own Ginger and Mint Tea. A good juice for the immune system is 3 Carrots, 3 leaves of bok choy with 1/4 lime for taste. Sipping on that through out the day is good.

    I think the important thing is to always find time doing things you enjoy doing, exercise as often as you can, nothing too intense, gentle exercise is enough. Find time to relax/meditate. And more importantly always believe, believe you can heal and get better. It’s hard to do a lot of the time, cos we get so many set backs, but really positive thinking will help symptoms more than negative ones. It can do wonders.

    Good Luck with everything
    Anita

    • Anita Andersen March 1, 2011 at 10:38 pm #

      Forgot to mention I do take Probiotics and feel like help. Also forgot to mention, I did avoid as much Gluten as I could, particularly whilst bleeding/healing.

      I did start another flare a month ago. I think mainly because I became less strict with my eating regime, as we do when we start feeling normal. I was straight onto everything I had been doing, and the bleeding (which wasn’t much) stopped within 3-4 days. Which is a lot better than last time. I suppose we never know why things happen, but I’m hoping things are better due to changes I have made.

      Anita

  7. Aletha March 2, 2011 at 8:34 am #

    I also had success with the Metagenics & UltraInflamix routine. SCD didn’t work for me as I am a strict vegetarian but PROBIOTICS are always good imho!!

    anyway, congrats on your wedding! The same thing happened to me. I was so stressed out from planning that my wedding dress (which I made) was too small on the day of the wedding! Luckily I made the train adjustable so no one could tell. Unfortunately, 2 months later I ended up in the hospital with pancolitis and a divorce a year later (very unhealthy relationship)

    My reccomendation – DO everything you can to PAMPER yourself, relax and get lots of help for the wedding, rest a lot and eat foods you know are nurturing. Muscle testing may be able to help you with that. I think the most important thing is to ask for HELP and acknowledge breakdowns as they happen. Hope that helps!

    God Bless!!

  8. shrtypdmnt September 23, 2011 at 2:31 pm #

    Not sure if you are still having problems. I am 30 and have UC. I am trying the brown rice diet. Most of the comments above say to avoid it, which makes since if you are prescribing to the SCD or some other low carb diet that has helped UC sufferers. But if you read Dom’s explanation for it and the difference between eating nothing BUT brown rice and eating brown rice along with every thing else in your diet, then it is easy to see how it might work. I have also researched this method elsewhere on the web and have found that this diet has helped others as well. good luck

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