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24 year old with ulcerative colitis

Meet Matt:

I am a 24 year old male who was diagnosed with UC when I was 18. Two years ago I had my last colonoscopy. This showed the inflammation was definitely less and not as high in the colon. I am currently going through a flare and I believe I’m overthinking everything. I have been on and off the SCD diet for years and now I’ve been strict for 25 days, as of today.

More Matt:

I work three different jobs. I am in sales at one job, I coach Ice hockey, and I am a part owner of a bourbon company. I enjoy playing hockey, hiking, and working out. I am from Connecticut and have lived here all my life.

Current Ulcerative Colitis Symptoms:

I am currently going through a flare. I wanted to jump right on prednisone to calm things down, but I had to switch to a new doctor. I currently have bad cramping, blood and mostly watery stools. There will be some matter, but not as much as I would like. I think the cramping is from the stool trying to get more formed. I also have a cold at the moment, which doesn’t help the cause.

Matt’s Story

I would like to hear from others. First, how long before prednisone kicked in? I’ve been on 30mg for 4 days now and the progress is not as fast this time as it was in the past. Second, what tips I should know going into the SCD diet, this time, as a long term plan? I can see the light at the end of the tunnel, but I am having a hard time getting through this flare. I will not touch biologics and I know my case isn’t bad enough to need them. In the past I’ve had success with the SCD, but I didn’t take well enough notes to see the daily food and bowel changes. UC has been annoying as all of you know, especially when in a flare. This flare, I am keeping a journal to show all changes for future use. I am excited to get back into remission and keep it that way. I know small flares may happen over time, but I never want to get back to this point, where it’s controlling most aspects of my everyday life. My family, friends and girlfriend are extremely supportive with everything, and I can’t thank them enough. I know I can get better and keep it that way. I let myself and my supporters down because I started eating junk food again.

I am currently taking 4 lialda pills and 30mg or prednisone for a week then weaning down. I’ve looked online ( I know, stupid of me.). Saying that prednisone doesn’t always work and that the next step is stronger medication. I’m excited and anxious about the diet and the changes I am going to see. I know the diet works and the medications will calm things down so healing can begin. I just need some reassurance.

I know the SCD works. It has helped me get my life back. I will continue to do it and not look back. I also know that prednisone and lialda work wonders. I just would like to hear some views from others.

written by Matt

submitted in the colitis venting area, CLICK HERE to submit your’s!