So after many months waiting and trying to get funding and paperwork ready for surgery…. it’s finally come together. I haven’t been writing much because things have basically been the same – cramps, blood, joint pain, etc. But as of today, May 5, 2010 I am now ready to schedule the J-Pouch surgery and colectomy and ileostomy and be able to document it and detail… Read More »My Upcoming Colectomy Surgery
I’ve been trying another sort of diet thing the past couple of weeks. I have tried every diet possible and none have ever worked for me… but lately I’ve been eating really bland, boring foods… think soups, chicken sandwiches, turkey sandwiches, pasta… basically anything that is soft and easy to digest. So far it’s kind of worked, and I’m feeling a little better!! Now having… Read More »Hope!
okay, today is March 8, 2010 and I have now added another drug to my list of medications I’ve taken, as well as another drug they’ll be giving me in the coming months. I thought I would type out a list of all my drugs to better give an idea of what some people might expect to be on at some point. Mesalamine or Asacol/Pentasa/Lialda: … Read More »My Drugs
I recently came across this article written by Christine Miserandino (www.butyoudontlooksick.com), called the Spoon Theory. People always ask me what it’s like being sick with a chronic illness and it’s always been hard to explain. When I came across this article, it was as if I had a small epiphany, and I realized what an ingenious way to explain how everyday waking up and doing… Read More »The Spoon Theory
hey everyone. my name is Ash and I have ulcerative colitis – or to be more specific, pancolitis – which means my entire large intestine is diseased. I’ve had every medication and experienced and tried almost everything known for the disease. here’s my story. I was diagnosed back in February 2006. some people have symptoms for many years before finally seeking medical attention, but for… Read More »Welcome to My World