I am a wife of someone with UC. I live in Arizona and am retired but my husband is still employed and trying to get this newly diagnosed UC under control. We have a large family and have lots of support but it is hard to explain to people what he is going thru and how it effects me also and our social life along with mental and physical issues for him. I feel helpless.
Arizona Cactus Jumper
My husband told me he had some bleeding in July. I was shocked as he had not mentioned it to me previously and we got him in right away for a colonoscopy, hoping it wasn’t cancer. Had a terrible doctor and waiting way to long for any real diagnosis so I changed doctors as I felt we were lost in the crack that is when we had another colonoscopy and were told he had ulcerated colitis. Started on Ascacol no relief, then put on Prednisone 40 mg. and no relief. We have tried nicotine patches and anything we read that may help stop the bleeding, then I found the book about how diet has effect on this disease, even though the doctors didn’t mention it. He has been on the SC diet, the beginning phase for 4 to 5 weeks and is still bleeding so we are wondering if we are doing something wrong or have other people had this experience. I found this web site and am hoping to be able to find some answers.
He goes on Imuran in another week if he isn’t better. Has lots 26 lbs and didn’t need to. The very beginning you are in shock and then you start trying anything you can but we don’t seem to be getting anywhere, is this common UC. I already have UC cookbooks and ready to start but can’t get the bleeding stopped. I feel so bad for my husband and I wonder will we ever get our life back. We are so active with our family and everything revolves around food so is there a light at the end of the tunnel? I know he can never go back to eating as we knew it so am willing to do whatever but right now nothing seems to be helping.
written by “Cactus Jumper”
submitted in the Friends and Family of Colitis Patients Venting Area