Hey UC’ers and followers of the site,
I received this email below a few minutes ago, and I’d love for anybody with some thoughts or personal experiences who can relate to chime in.
below is the email:
Hi Adam! I know that you hear from so many of us so often, but, I find your site and message board so much less intimidating than others.
Anyway, I have a brief story for you.
I was hospitalized 11 weeks ago due to severe pain around my bellybutton and lower right hand side.
Admission and an appendectomy followed.
Interestingly, I was admitted 13 months ago for the same pain and the CT found a stone lodged in my appendix; they gave me a course of antibiotics and decided to send me home.
The next month (August of 2015), I was diagnosed with Ulcerative Colitis.
I started Remicade in March of 2016 in order to get off of the Pred/Asacol combo. I have gone every 8 weeks since, with the exception of these last 11 due to the surgery and this, why I am writing to you.
[highlight]I have had no symptoms, other than diet related… [/highlight]which I had before (can’t give up the morning coffee).
I was rescheduled for my Remicade last Friday, but decided to wait and see my Gastro. today first. I do not want to go back on the Remicade, but I am a bit scared not to. I know that the Doc will tell me to resume the treatment, but, frankly, I don’t want to.
I’m wishing on a star here that my body is functioning better and that I can possibly control the symptoms without meds. I hate meds and the thought of being on Remicade indefinitely makes me sick to my stomach (pun intended).
Any stories or thoughts on appendectomy after UC and improvement of symptoms? I have been reading studies about the before and after cases, but I’m interested in the opinions of fellow UC’ers. I’m shooting in the dark here a little bit, but any days without symptoms is a good day. Wishing you and my fellow UC’ers a Happy Halloween and good health.
So there’s the story/email that I received.
Does anybody have something to add that might help out this UC’er who is in a bit of a mental/physical dilema with what to do next?
Thank you so much to the writer, and to all of you who follow the site and if you’re getting ready or already got your trick-or-treating in…don’t eat all the candy tonight…please:)
I was able to find a published article from PubMed (after about a 3 second search…it’s easy guys, you can do it to..there’s many out there:))
That study is titled:
Meta-analysis of the association between appendiceal orifice inflammation and appendectomy and ulcerative colitis. the full study can be viewed here[button link=”https://www.ncbi.nlm.nih.gov/pubmed/27338627″ style=”info” window=”yes”]Appendix and Colitis Study.[/button]
Here was another study, this one you would need to email the scientists to see the full documented results:
(If you go to the link above, and google search the scientists names, I suspect you won’t have a hard time tracking them down either:)
So I like UC’ers. That’s been going on since 2009 I’d say.
I started site and the eNewsletter(you can join that below) shortly after being diagnosed with ulcerative colitis in October of 2008 with severe pancolitis (when my whole colon was inflamed).
For me, it was a very rough start with severe symptoms. Getting bounced from medication to medication was not easy or too helpful. But, I did meet another UC’er, changes several parts of my diet, and of course the rest is history.
Leave a comment, ask a question, take advantage of our past experiences here, use the search boxes, they are your friends to0:)
Remember while using the site that:
UC symptoms and flare ups don’t last forever and no two people are the same.
You cool with that? good!
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