My name is Sarah I am 35 years old and I was diagnosed with Ulcerative Colitis almost 10 years ago. I have been in remission (no bleeding) for over a year thanks to Lialda. I still get mild bouts of diarrhea here and there, but nothing severe until lately. 2 weeks ago I started having some issues again. I have had no appetite and get diarrhea after everything I eat no matter what it is. I’ve been drinking a lot of water and taking Imodium.
I was wondering if anyone had any advice?
Submitted by Sarah in the Colitis Venting Area
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Sarah,
Like you I have had UC for ten years, this month. I had taken sulfasalazine tablets for 9 years with little to no issues. Last summer I had my first serious flare where I had to go to the doctor and take other medication to get it under control. The doctor told me after being on one medication for a long time, your body can build up a resistance to it. Basically the medication that worked great for several years no longer would work. I tried lialda, but it wasn’t for me and I had another flare 6 months later. I have been on Asacol hd now for awhile and I like it, for the most part. I had my worst flare since I originally got diagnosed this summer, but a lot of that I blame on myself and not taking good care of myself and some other things. I am finally get back to my normal and tapering off of prednisone.
I think every medication has a shelf life for us and when it stops working, time to look at a new approach. There seem to be a lot of options as mess go and like everything else with this disease, everyone is different and responds differently.
Keep your head up and try a new approach. Talk to your doctor and try a new medication.
Good luck,
Nick
Thanks, Nick. I was on Asacol for the first 8 years then switched to Lialda around 2 years ago. I have been feeling a bit better for the past 3 days. Thank goodness! I was on Prednisone and it always works really well for me.
Hi Sarah,
Sorry to hear that you are in a flare. I was diagnosed with Pancolitis in 2004 and have been on Asacol ever since. Currently I am experimenting with the SCD diet with good results – I am in my second week. The attached web address is something they posted – it is a 5 day diet for a flare. Hope it might help. http://scdlifestyle.com/advanced-scd/5-day-diet/