This is an email I received from one of the UC’ers who uses this site, and what a great message to get, have a read:
Ann here from England, thought I would give you an update, I purchased the SCD book by Elaine Gottshall
, and bought most of the ingredients required to commence myself healing plan, after 3 weeks of living by this food bible the colitis Flare up has settled down no signs of any blood or diarrhea, for which I am over moon with.
So heart felt thanks for all the info on your website, This enforces my decision to renounce the hard drugs which my specialist wanted me to start on in February of this year. You have mentioned a facebook page, unfortunately I don`t do facebook, and have no objection you mentioning me in your list of self healing people.
My you continue to keep well, take care my lucky angel
Ann
Thank you Ann for sending the message over, this really made my day.
I’m sure this message will inspire others who are having a hard time getting their UC symptoms under control to try the SCD diet related treatment ideas as well.
Medications are great, and they do work for a decent percentage of people to manage colitis symptoms, but for other people with colitis, they don’t always bring the results that folks are looking for.
So big hip hip horray for some other ways of going about the treatment of this nasty disease.
Have a great week to all, especially you Ann,
Adam
So I like UC’ers. That’s been going on since 2009 I’d say.
I started site and the eNewsletter(you can join that below) shortly after being diagnosed with ulcerative colitis in October of 2008 with severe pancolitis (when my whole colon was inflamed).
For me, it was a very rough start with severe symptoms. Getting bounced from medication to medication was not easy or too helpful. But, I did meet another UC’er, changes several parts of my diet, and of course the rest is history.
Leave a comment, ask a question, take advantage of our past experiences here, use the search boxes, they are your friends to0:)
Remember while using the site that:
UC symptoms and flare ups don’t last forever and no two people are the same.
You cool with that? good!
now get on our newsletter so we don’t forget about you.
The SCD diet worked for me for a year and then I begin to have issues that resulted in doctors recommending surgery to me as only solution. Begin Entyvio instead and have been in full remission for 6 months.
Me to. Yeah!
Adam…i am trying the paleo diet…only a week so far. I will keep you posred!!
HI Sue,
Please do keep us posetd!!
Take care,
Adam
Hi Sharon,
Super glad you are having good luck with Entyvio, please add a review to the Entyvio review page if you have not already! For sure others would like to hear about your success who search Entyvio there. Here’s the link:
https://ihaveuc.com/new-ulcerative-colitis-medication-vedolizumab/
Thanks so much and best of luck to continued success to you Sharon!!
-Adam
I can only tell my experience.Around 50% of ulcerative colitis patients will remain in remission in any given year.If I have remission I will attribute it to whatever I am taking leading to spurious associations.Diet improves or worsens symptoms but it does not cause ulcerative colitis.You must take all the benefits of diet which suits you but DO NOT STOP THE DRUGS Prescribed by your doctor lest you suffer a severe relapse later on.
Hi Ravi,
Interesting opinions you have. And once again, I think you prove that we are all unique. Good luck with whatever combination of treatments you are using, and although I disagree with your capitalized section of your comment in quite a few situations, we are all entitled to our opinions on what is the best way to go. Especially if we are the ones living with it.
Good luck to you,
Adam
Ravi, unfortunately, I can’t take the drugs the gastroenterologists prescribe. I am hyper sensitive to all the mediations given me, even by my rheumatologist. They don’t even believe me so I get to point that I’m not going to tell them and try to take the least invasive drugs I can when in a flair. I make my own milk kefir, which has helped me tremendously and now I’m also making water kefir and am interested in natural processed fermented foods such as sauerkraut. If a person can find an alternative to the bad drugs prescribed by out doctors, go for it. There are good supplements out there that help also.
awesome