Just wondering how other people who are still in the work environment deal with working during a flare up. Also being only 24 I feel like people don’t believe or really understand what exactly i deal with on a daily basis. I haven’t dated anyone in i would say 2 years. It almost doesn’t seem like it would be fair to the other person. Yet my biggest wish is to be a mom but now that task seems horribly daunting. Just wondering about other peoples experiences. I go to specialist and OHSU in Portland, or and they seem to have a couple good options to try before going for remicade. Has anyone been on humira for it? They presented that as an option but the gi doc i was seeing before said that they didn’t use that for colitis yet just Crohns. Its hard to know what is right when different docs have conflicting opinions. My family has been great. I live with my mom right now and i honestly don’t know what I would do if i didn’t. I cant work enough hours to keep up the rent and lifestyle i had before getting sick. I’m also kind of grieving the loss of my former life. I have amazing friends and i think lately they think I’m being lazy or flaking out on them. It feels a little pathetic to be 24 and going to sleep at 9 on a Friday night. Me and alcohol are not friends anymore which is fine i was never a huge drinker to begin with. But i did enjoy a nice cocktail or glass of wine with dinner. Coffee is another no go which is said cause being in the NW that is kind of what we do! We drink coffee!! Its all such an adjustment to how it was id say 2 years ago when i was living that fun 20 something life.
Where I’d Like to be in 1 year:
written by Mary-Ann
Im Mary-Ann! Ive been diagnosed for a little over a year and a half now. I am 24 and work as a Makeup artist and Nail artist.