What’s Happening With My Colitis:
Hi all. Like I stated in my intro, I’m 6 years deep with Ulcerative Colitis, I’ve tried a bunch of medications and none of them work. Currently, I am taking 15 mg of prednisone. Have been on it for about 3 years now. It seems to work when the dosage is high, but because of the bad long term affects, I am unable to stay at a high dosage. Being on 15 mg really isn’t doing much good (not keeping me in remission). So after 3 trips to the hospital over the past few years, 2 of those trips resulting in me having pancreatitis due to medication, and my specialist now having run out of options in terms of medical treatment, he has given me the option of surgery. I was totally against it but after loooooong consideration, I realized I have absolutely no other choice.
If I want any sort of life I need this surgery.
So April 11th is the day and as much as I tell myself I am ready for it, I know when the time comes I will be super scared, anxious, and nervous and will probably not w ant to end up doing it. I recently payed a visit to my specialist and he came to me with this last resort option before surgery. An Anti-biotic by the name of Vancomycin. Has anybody used this for UC and it actually worked? He told me the only downside of this med is its price, as I do not have any sort of insurance coverage due to the fact I am unable to work because of my UC. So besides the price being steep, I am just wondering will this be something that can be used long term? Or is it just to get my health up so I can go into surgery healthy?
If anybody has any feedback I will love to hear it as I need as much reassurance about having this surgery as I have never even broken a bone in my body, so to me it’s a pretty big deal.
Only medication that has given me any sort of improvement has been Prednisone 35 mg and up. Anything below that, things tend to slip away.
Thanks all for taking the time to read my story.
submitted in the colitis venting area