Hi everyone! Hope you are all hanging in there and that today has been a good day for you.
THANKS Adam for posting my story!
So I have been on the Remicade for 6 days now. So the first couple days I felt tired and no other changes. On the 3rd day I woke up and my joints were aching more than usual. I have had joint pain all along with the UC. I was hoping that Remicade would also help with the joint pain but now I am thinking differently. So I went back to work Monday night after a couple weeks on medical leave, thanks to my wonderful co-workers at the hospital who donated over 100 hours of PTO, I was able to get paid while resting at home (I am truly blessed). My UC seemed to be slightly better Monday, but my joints are in serious pain. I took Tylenol and Advil for pain so I could work all night with some relief. By the time I got off work Tuesday morning I was aching everywhere there is a ball in socket joint! I slept well and returned to work Tuesday night at 7PM. My gut feels GOOD!! Only 2 trips to bathroom !!! WooHooo! …….JOINT PAIN out of control though. Have to keep moving, the pain is worse after sitting for more than 20 minutes. Activity always helps. By the time I got home this morning at 8AM and then drove kids to school, got gas, went to grocery, came home did some light house cleaning…I was DONE!! Time for bed. WRONG!!!! Oh no! Here we go again! In and out of bathroom at least 8 times before getting to sleep. Slept 5 hours and woke up to intense joint pain everywhere still, even in joints that don’t normally bother me at all! Ankles, heels, knees, hips (the worst!), wrists, elbows(on fire!), and shoulders. A walking nightmare, but much better after getting up and moving around. Took some more Advil even though my doctor would not approve I’m sure.
So……I am still optimistic and hopeful that these symptoms will subside, maybe by the 2nd infusion.
Does anyone have any similar reactions to Remicade and joint pain? Would love to get some feedback. My doctor did do a RA test and it was negative, and my CRP is normal. Also, does anyone have any good ideas for joint pain relief? Exercise does continue to help, but then afterwards there is increased pain. LOL I can’t exercise all day! I am going to Zumba tonight (my favorite thing to do no matter how I feel). I just pop a few Advil prior to class and it does the trick. I have tried the Glucosamine/Chondroitin thing through out the years but never any significant relief. I have also tried Tumeric for a few months with minimal effects. I am also on a large dose of Omega3 (the liquid form) daily.
Oh! FYI Remicade and photo-sensitivity yes in my case. Get burned quicker in the sun!
Take care everyone! :)