4 New Colitis Related…Um…Things…

adam colitis

Adam (founder of iHaveUC)

Hey UC’ers,

This is a new section of the website.  I’ve tried to figure out a way to allow people and businesses, and organizations an easy way to promote their cause/business/program on the iHaveUC site moving forward.  And…here’s the first round at this. There is a form that was filled out by the following folks, and I’ll monitor them in the future to make sure what gets posted passes my “smell test” for things that should appear on the site.

This type of broadcast isn’t going to be happening all the time, and I’ll try to keep it limited, but here goes for the first few:

Producing Colitis Episodes

Lucky Tiger Productions

I am producing about Ulcerative Colitis. Each episode will run approximately 1-2 minutes in length with the purpose of helping to inform and educate Ulcerative Colitis patients, their loved ones and the general public.

We’d like to ask an Ulcerative Colitis patient, age 45-55 in the NYC area, about your experiences with the condition on camera. The footage will then be intercut with other patient and doctor interviews to create short videos with subjects such as: ‘What is Ulcerative Colitis?’, ‘What You Need to Know?’, ‘How to Control Pain?’, etc. We will require two hours of time and plan to record the videos on Feb 25-26, whenever is most convenient. We can offer you an honorarium of $150 for participation.

If you’re interested, please contact me at Alison@LuckyTigerProductions.com or 914-263-0869.

Alison Bucalo, 31 Howard Street, New York, New York, United States

Fecal Transplant New Blog

I have recently started a blog chronicling my experience with treating my ulcerative colitis using a self administered fecal transplant. My purpose is to share my experience with others, so that they may learn, and to be available for any curiosities they may have concerning my experience.

http://fecal-transplant.blogspot.com

Alex Walsh, gut.crusader@gmail.com

Nutrition Heals

Get Funded and Get Healthy TODAY! Our Foundation helps FUND patients and creates specialized CENTERS to help those with Crohn’s Disease, Ulcerative Colitis, MS, Fibromyalgia, Endometriosis and other autoimmune diseases drastically change their health and achieve remission through NUTRITION. Your funding goes to doctors, tests, lodging at our centers, nutrition, supplements, meals, classes, counseling and support. The Centers are available for people who need to dramatically reverse their nutrition habits due to chronic immune diseases and don’t have the expertise, location, money, or support to make this kind of drastic change. It usually takes a few weeks to a few months to start someone on the road to health. All clients would be paired with a trained doctor to coordinate nutrition regimens to restore vibrant health. Clients can choose to stay at the CCNF Centers to get the most immersed support, or they can get support virtually with our staff of Patient Advocates, Life Coaches, Nutritionists, and Educators who will work with you each step of the way to make sure you reach remission success! Join the Movement TODAY at www.NutritionHeals.org.

Jenny Franklyn, pjohnson@nutritionheals.org

IBD App

Dear All,
My name is Sergey, and I also suffer from UC . I was diagnosed 1,5 years ago. As I am a software developer, I am planning to make a mobile app , which could help to keep track of things and somehow assist in UC and IBD life generally. The application would be released immediately for iOS, Android , BB and Winmobile phones. Please, I am asking to feedback and motivate me in this hard work, because I would invest a lot of time and efforts.

For Now there are two general Functions which I suppose are

a) Bowel Movement module, which will help you to log your WC visits and the different parameters of BM like mocus, blood etc…. This information then you could share with your GI doctor and help him to see the real view of the situation.
b) SCD module, which will give possibility to fast check what is legal, what not.

Please take several minutes to visit www.theibdapp.com to feedback and motivate me for the development. Tell me what functions would you expect from the perfect IBD app. What it should do? What it Could do?

Please, it’s will take 2 minutes of your time !!! PLEASE PLEASE just share your opinion and help with ideas. If even no ideas are coming, just an encouraging message would be a GREAT MOTIVATION INJECTION.

Help to make something which can help in IBD life ….

www.theibdapp.com

Sergey

—————————————–

Thanks again to everyone who has added to the list above, I sure hope this type of info will be helpful to some of the readers of the site.  Have a great rest of the weekend, and a great week coming up to start the second half of February.

As a quick sidenote, I’m working on pulling off a live interview right now with a pretty special UC’er who’s been following the iHaveUC site nearly since its inception.  And although this UC’er has been through hell with getting symptoms under control, he’s wanted to come forward and do something super cool and share what life is like RIGHT AFTER getting surgery.  Still in the works, and I hope it can be pulled off since I for sure have some questions about what life’s like.  Anyways, not a for sure, but in planning stages at the moment.  Stay tuned (and get on the newsletter if you’re not already).

Adam Scheuer

 




Ulcerative Colitis Tips


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4 Responses to 4 New Colitis Related…Um…Things…

  1. HEATHEN HOLIDAY February 16, 2014 at 7:13 am #

    Hi Sergey,

    Maybe include a section to record the drugs we take (and have already taken that don’t work!) and food that we eat on that app? And somehow be able to email it or print it out for our doctor? Kind of pointless to have an app full of info. and not be able to share the info. It is a total pain in the butt to have to re-write our entire UC history if we change GI doctors. Keep up the great work, xoxo, HH

  2. bev February 16, 2014 at 4:37 pm #

    Great, Adam…GREAT!!

    Can’t wait to see all of them…

    • Adam
      Adam February 16, 2014 at 7:03 pm #

      What up Bev,

      glad you’re enjoying, surely more to come in the future!

  3. Tony March 3, 2014 at 8:08 pm #

    Sergey, don’t want to burst your bubble, but this app already exists:
    wellapps.com

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