Hi guys, my name is Dean and I am 21. I’ve had UC now since February so still all new to me. I’ve been through a lot so far but hoping to find recovery at some stage.
Some more background:
I enjoy sports, like soccer. Love swimming I’m from a small country called Ireland :) I am an easy going lad who loves to hang out with friends.
Symptoms of UC:
Some cramps. Bleeding just started today again for the first time in about 2 months
Hello guys, basically I’m after having my 3rd dose of infliximab about 2 weeks ago now. I felt great afterwards and improved a lot. I was down to about 4 bowel movements a day. For the last 3 days the frequency has increased to about 7 :(
I had an appointment with my GI today, and he thinks the infliximab is not working well enough. He wants me to have another scope done in a few weeks. He also wants to try something called Humira, as the infliximab isn’t having a great affect on me. Has anyone any feedback about this drug and is it affective? All I know is that I take it at home every two weeks. The GI also mentioned that I might have to start thing about having my entire colon removed if humira does not work. So yea didn’t get any good news today really.
I’ve also been watching my diet a lot but I’m finding it hard to figure out which foods don’t agree with me. Will the effect me that day or the day after??
I really don’t know what to do anymore.
My family and girlfriend have been really supportive these last few months. I spent 3 weeks in hospital and they nearly took my colon away it was so bad. After 3 weeks of IV steroids I was sent home, and I have spent the last 8 weeks on oral steroids. I just got back to work and things were looking good for once.
I know what everyone else on this is going through so any advice or help would be so greatly appreciated. I was also thing about starting a new probiotic that has come out for people living with IBD. It’s called Optibac. Any help at all guys would be great. Thanks again Dean :)
I’m currently taking prednisone rectal foam which I find really helps with the pain in that area. I also take asacolon and 6-mp. I take amitriptlyne at night to keep the bowel relaxed.
written b Dean Murphy
submitted in the colitis venting area