14 Year Old Girl Diagnosed with UC

My daughter is 14 and was diagnosed with UC in March this year…

Her Medications so far: steriods.. 3months no change.. asacolon..6 months no change..Azathioprine for 8 weeks still no change..

I am devastated to say the least.. I have her on loads of supplements. thanks to alternative health, would love to try your diet but 14 year olds have a mind of their own..if she had been a lot younger or older I think I wouldn’t be facing the frustrating battle that faces me daily.. good luck.

Anonymous poster

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Thanks for posting anonymous poster.  I know it must be super hard to see your daughter going through something like this.  My guess is that all the doctors you have seen all probably hope they could give you some advice or the magic cure as well.  Especially for someone who is just beginning high school and should be out doing all kinds of other stuff than UC related doctor visits, medications, cramping etc…

You remind me of a girl who was diagnosed with UC at just about your daughter’s age.  She is the girl who actually got my UC into remission about 14 months ago.  As you already know, she was the one who told me about the SCD diet, and she is the one who walked into my kitchen and told me what to throw away etc… And also, she is the one who started the diet back when she was in high school and put her UC into remisssion, and then when she went away to college she started eating whatever she wanted and ran into horrible UC symptoms once again and had to drop out of college and go home for a long time.  But, she was also the one who once again got back on the SCD diet and put her UC into remission again two or three years ago and has been symptoms free and medication free ever since.

So, all I am trying to say is your daughter for sure probably has no desire to be on a restricted diet.  I surely didn’t want to be when I was in high school.  But, if your daughter did want to give some diet stuff a try, she wouldn’t be the first teenager to go off the deep end and do a massive diet change either.

Best of luck, no matter what happens, its super cool that you care so much about your daughter, we need more of that on this planet.

-Adam




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4 Responses to 14 Year Old Girl Diagnosed with UC

  1. Linda November 3, 2010 at 6:07 am #

    Hello, thanks for your story. I’m so sorry to hear about your daughter, so young. my son, who is 6 years old, also has ulcerative colitis. he has taken all the same drugs as your daughter, and he is still on azathioprine, prednisone, and is getting his 5th remicade infusion today. we have been doing the SCD with him for almost 2 months now. and, trust me, it was not easy in the beginning. I actually had to explain to him that if we don’t do the diet, then we are faced with surgery and he would have to have a “poop” bag on his stomach if we don’t. we just saw the doctor yesterday, and she is talking surgery again. I’m not willing to accept that my 6 year old son will have to lose his large intestine and be faced with all kinds of surgeries and infections in the future. I don’t know how your daughter’s GI is about diet, but, my son’s GI, as well as many others, do not believe that diet plays a role in IBD or other gastro problems. How could it not! It just does not make since! So, I’m making sure to give the diet a fair chance, and every one is different, everyone takes a different amount of time to obtain and stay in remission, and my son is not there yet. if you haven’t already, I would recommend buying the book “Breaking the Vicious Cycle” by Elaine Gottshall, the creator of SCD. a lot of people on here have had tremendous success with SCD, so, I really hope you can convince your daughter to give it a try. in my opinion, it is a far better choice than losing your large colon. one more note to make, and I plan on posting an article soon on this website about it(note to Adam, has anyone else talked about Carrageenan on here, don’t want to repeat) try to avoid foods and products with “Carrageenan” in it. It is a Red Seaweed that is highly processed and used as a thickener or emulsifier that is actually approved by the FDA as a safe preservative, but, it is not! I try to do as much internet research each day and came across this ingredient. many people have posted that they believe it could have caused their UC or Crohns. Carrageenan is in ice cream, sour cream, artificial coffee creamers, toothpaste, lean cuisine meals, to name a few. It is very cheap so that is why the FDA says it is safe. some people’s stories i have read about said as soon as they took this out of their diet, they had decreased symptoms, or there symptoms completely stopped. now, of course, you don’t have to worry about avoiding this ingredient if you are doing SCD as it is not allowed anyways. I hope I was somewhat helpful in my post. All of us on here try to inspire and help each other. I wish you and your daughter the best and I am very thankful to Adam and everyone else here for this venting site. keep us posted! Linda.

  2. Jean November 4, 2010 at 5:20 pm #

    Thanks for your comments its so good to hear from people going through the same daily battle..Linda thanks for your advice,yes Iv heard about carrageen, in fact I know it has an effect on my daughter..(decieded on a bit of ice-cream last night and I guess her pain was due to eating it).. so santa is going to be bringing some really good books ie “Breaking the vicious cycle”..good behavior or not :o)

  3. Jean November 4, 2010 at 5:23 pm #

    linda..sorry for not saying..Good luck with your lottle boy x

  4. Rachel July 22, 2012 at 11:29 pm #

    I was diagnosed at 8. I’m still suffering from it now and looking into surgery. Having this illness at such a young age is frustrating and hard to deal with. I hope and pray the best for all of you.

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