Hi I been on here for about a month now I’m glad I found this site.
Well I have had Severe Ulcerative Colitis for about 12 years now, its been so long I can’t really remember exactly what month and year I got diagnosed. Can’t say I have ever been in full remission. I’ve been under moderate control to where I can deal with it. I have probably been on every med out there and the only one that works is the dreaded prednisone. My doctor says I’m prednisone dependent and I’m a difficult case. Been in hospitals and doctors offices so much I can’t see straight. Everyday I have a new symptom. It’s really embarrassing, the people at the hospital know my face, I’m in there so much for things. This past month has been really bad for me. Had about two flares, I got MRSA, a really bad infection. Blood count was double the normal. I got the infection in my thumb twice. Second time in the OR. Now I found out I have multiple kindney stones blood in my urine so I go Thursday for a camera up the pee hole….
Well, I have a question for all you UCers: I experience some pretty severe pain … everywhere I get these pains out of no where. I get to the point where I can’t even get out of bed. My back, my hands, and wrists hurt so bad I can’t stand it. My knees… it’s like the pain moves from area to area. I’ve been on pain medications for almost 2 months now. It’s gotten so bad. Some days the pain is so bad I can’t function, almost brings me to tears.
Another question:
What is prednisolone any difference from prednisone?
Anyone else go through this?
Colitis Medicines:
Prednisone
Mercaptopurine
cipro
Phenergan – for nasuea good stuff
have taken humira didnt do good with it
Submitted by “Pain” in the Colitis Venting Area
I’ve have had Severe Ulcerative colitis for about 12 years now in 2011
