1 Year Surgery Anniversary!!!!!

tebowing

Friends and I "Tebow'ing" on the Tower of Terror at Disneyland. (Not a Tebow fan)

Introduction:

Hey all, it’s Curtis and I’m coming up to my 1 year anniversary of having my colon taken out on February 26 and I haven’t posted an update in about 3 months so I thought I’d fill you guys in!!

Curtis’s Surgery Anniversary:

So my last post was in November and I figured it was time to give you guys a little update. I had an awesome time during the holiday season. It was much better than 2010’s holiday season when I was struggling with UC (before I knew it was UC) so I had a great time with friends and family being healthy and being able to eat all of the good food that comes with the holidays.

I’ve been surfing a lot, playing soccer a lot and am starting to train for the Kona half marathon benefitting the CCFA which is June 24! If anyone wants to do this thing then that would be sweet. I’m trying to get some of my friends to do it with me too so that it’ll be more fun. It’s through the Team Challenge company and the meeting for me is this coming Saturday, this is where I’ll find out all of the information on fundraising and training and what not. Here’s the website for anyone who’s interested! http://www.ccteamchallenge.org/
I’ve never done anything like this and I figured it would be a good one to start with because it hits close to home because of everything I’ve been through last year (and it’s in Hawaii!). Anyway, if anyone else wants to do it let me know and we can meet up!!

Another UC’er who lives in Atlanta

and just had the surgery recently,

him and I are thinking about

setting up a Stand Up Paddleboard Event

to raise money for the CCFA this summer too

so stay tuned for information on that!

San Diego California

Downtown San Diego during winter

I have a part time job and I recently got an internship too so I’m definitely keeping busy and getting my life back! I work at a program called School in the Park as a facilitator and it’s an awesome job. The program works with 2 inner city elementary schools and busses different 3rd-5th grade classes into Balboa Park to have their class in different museums each week. It’s really cool because the kids have the opportunity to go to all of these cool museums and learn things in a hands on way unlike if they were just in a classroom at school.

I just got an internship with RAEN sunglasses and I am BEYOND stoked about it. I’ve been working hard for years now trying to get into the action sports/surf industry and this could really be my chance to get in there. I start on Tuesday and the office is right across the street from the beach in Encinitas, how cool is that?!?! I can’t wait to work hard and learn a lot of new things about the business and expand my network and potentially get a full time job! Here is the website for the sunglasses, they are SUPER cool!

dog with sunglasses

my dog Carly helping me wax my new surfboard

  http://raenoptics.com/

Well that’s my little update. I can’t believe that a year ago I was 115 pounds and on my last days. Everytime I see my scars it reminds me of everything I’ve been through and how hard it was and it makes me appreciate life just that much more. I HOPE that anyone who reads this and is struggling with UC will know that surgery is a VERY REALISTIC option. I have been able to get my life back and I am doing everything I used to do before I had UC again which is amazing. It doesn’t even feel like I’m missing my large intestine, but it’s crazy to think that I don’t have one anymore!

If you’re struggling, please know that surgery isn’t the end of the world, but the start of a new life!!!

Medicatons:  NONE

written by Curtis

submitted in the Colitis Venting Area




12 Responses to 1 Year Surgery Anniversary!!!!!

  1. Davina February 23, 2012 at 4:36 am #

    So great to hear your update and things are so much better for you Curtis!

  2. Adam
    Adam February 23, 2012 at 10:03 am #

    three words:

    “CURTIS FOR PRESIDENT!”

  3. sc February 23, 2012 at 11:23 am #

    Hi Curtis,
    We’re looking at surgery for my daughter who’s struggled with UC for 2.5 years now and has been on scd/low carb/anti candida/glutendairysugar free etc etc diets, Chinese Herbs from around the world, ayurveda, LDN, fecal transplants, supplements galore etc etc with no effect. I am so scared so I really appreciate hearing updates like this. I hope we have the same results. I’m assuming you have a jpouch? That’s a LOT to go through in a year! I’m so happy you’re well and back to living life.

  4. Bev February 23, 2012 at 5:34 pm #

    Good on you, Curtis!

    Cheers:)

  5. Zach February 23, 2012 at 10:20 pm #

    Thats great news. I’m 25 and have had UC since I was 18. No med’s have worked, so am looking at getting surgery in the very near future. However, I am packing it really bad.

  6. Shelly in Maine February 26, 2012 at 6:22 am #

    I second Adam’s nomination!
    I just want to wish you continued good health and thank you for being so brave and sharing your story(and Blake and others) and making it a much less scary thought/consideration. As a lifer with UC-about 29years diagnosed and symptoms “forever”! who is out of meds. I am no longer afraid of the possibility(Hopefully not, of course!), but was at least able to have the discussion with my GI-for the first time…SO THANK YOU and GOOD HEALTH! Shelly

  7. Yvette Moore March 4, 2012 at 10:57 pm #

    Hey, I had the surgery too. Had my first surgery was the end of December, 2011 and my reversal was mid-February. I feel great…..but this is a big surgery. If I had to do it all over again…..I would. It has been wonderful not taking all the pills.

  8. WC March 5, 2012 at 6:15 pm #

    35 year old male–I’m 4 years removed from surgery after rapid onslaught of UC that came on over 3 months–eventually put me in hospital and became clear that surgery was only choice for me–in ICU in 24 hrs leading up to it–so–wasn’t really a choice on my end if I wanted to keep living–and while it was a pretty big surgery that took a good month to recover from given I’d lost so much weight going in (35 lb on 170 lb frame) –it cured my disease. Last 4 years I’ve led a totally normal life on all levels–and I’m much happier now w my new plumbing than I would be were I battling the disease in same way I had been in months leading up to surgery. I eat/drink/exercise/enjoy life w no limitations now–have 1.5 yr old daughter now as well. Moral of story is that while surgery maybe is and should be last resort–it’s really not as bad as one might imagine–and can be life changing in a really awesome way if you’re battling a pretty severe form of disease over extended time and medicine doesn’t really work..

  9. Jonathan March 8, 2012 at 2:46 am #

    Glad I have the same surgeon, hopefully this means I get the same results! Great to see how ell your doing bro!

  10. .D. July 1, 2012 at 11:04 pm #

    I would like to know if you have more bowel movements with j pouch, and how the consistency of your stool is. I am considering in getting a j-pouch, but would like to know all the pros and cons.
    THanks.

  11. Lisa August 2, 2012 at 2:19 am #

    My son is scheduled to have the surgery on September 14th. He’s having his colon and rectum removed and a second surgery 2 months later to do the j-pouch. Can you please tell me about what we can expect during the surgery recovery. Thank you so much!

  12. pkh June 21, 2013 at 3:49 am #

    My son is having problems with weight loss since his J pouch takedown surgery. Have you had any issues with keeping weight on? Thanks

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