My name is Jamie, I was diagnosed with UC on the 6th of September 2011.
currently in full remission for the last 4 months and couldn’t be better!
symptom free completely up to 7 weeks after remicade.
Felt like I needed to do a post here because it’s exactly 1 year today since I left the hospital, since I knew my whole life was about to change in ways i couldn’t even have imagined. And really, right now where I’m at is a pretty good place to be :)
In this year, I’ve made AMAZING life long friends, from all over! including 2 amazing girls from Sweden, who I finally got to meet for the first time last month!
I thought this disease was going to end my social life, if anything I have more of a social life now than i did before, I’m an 18 year old guy who doesn’t like being stuck inside! what else can I say? :P
I have many things I regret not being able to do because of this disease, like having to drop out of school is my main one, I really wish my flare hadn’t been that bad and I didn’t have to leave :/ it killed me to say goodbye, but I’ve found ways around it, i’m still working towards my goals!
Also, another great thing was when the kitchen staff in the hospital that I was in, one of them had crohn’s disease, talking to her made me feel so at ease knowing that someone else knew what I was going through, along with this page, the short conversation I had with her made me feel like I was gonna be okay, she’s out and working, even if it’s not a dream job. and it took away a lot of anxiety I had about IBD.
I feel like a transformed person in this year, I don’t think I’ve changed much personally, just wised up and changed physically. like, gained a lot of weight! (from 98 pounds to 135) and the battle has taken it’s tole on me, I do look a lot physically older too, I no longer have the baby face I once had, but oh well!! at least I can go to shop and get served alcohol without my ID! :P
This has been the toughest year of my life, but I wouldn’t change a single thing. this is gods plan in my mind, and I’m just going along for the ride to see where it takes me!
Where I’d like to be in 1 year:
finished my foundation degree in councilling and psychotherapy and studying psychology in college.
Remicade is a god send! if you’re worried about trying it, don’t be!
written by Jaime
submitted in the colitis venting area