My name is Olivia, I’m 18 and I’ve had IBD for about 2 years now. My mother had Crohns and despite numerous scans, tests and hospital visits I’m still in the 10% of people who are difficult to diagnose between Crohn’s and UC for sure (although its seeming to be UC). I’ve been on so many courses of Prednisone and I’m gluten intolerant, (following a strict diet already) that I’m losing hope because nothing is helping my ongoing flare ups! :(
I know there will be many people with UC with much worse symptoms and situations than mine, but I am curious to find out if anyone has advice or stories very similar to mine!
Because of my age, the scariest thing is the idea of having surgery yet. My specialist is demanding that I shouldn’t be put on any more courses of steroids because of the risk of osteoperosis. I have an anxiety/stress problem which adds to the UC and the amount of flare ups I have.. as well as any foods containing gluten which I avoid.
I’m curious as to whether I’ll be left with surgery as my only option, are there alternative treatments, or is ongoing prednisone an acceptable answer…? Also, have people recovered from UC or is it usually a life long thing? So curious to find out more and see what other people have done to help themselves!!
Medications So Far: Prednisone, Azathioprine, Enemas, Pentasa, stress relief tablets..etc etc
Submitted by Olivia in the Colitis Venting Area