Hi Adam,
I’m very disappointed about something! I recently applied for a position with the C&CF and then a few days after my interview I received in the mail a letter request donations for the C&CF? Ok I must be on some mailing list! They asked for $100 to $1,000 ok cool but when I started thinking about the foundation and if I wanted to work for it I questioned myself where are the funds to this non-profit organization going?
Before I interviewed with the San Diego District Manager I was hospitalized and racked up some lovely doctor bills (after insurance $6,580).
During the interview with the San Diego District Manager I asked the question how the funds are used! I was shock to know that only 2% are used to assist Crohns & Colitis patients without insurance or jobs. The rest is between salaries and research. OK what the heck are they researching? A cure? I mean really!
The medication they give us is a joke half the time and we pay for that! The steroids from hell…! Why don’t they just invent a colon replacement and call it a day! I might be more emotional about this cure thing then I should be but I just don’t believe that thats where the funds are going! I think the employees of the C&CF are making a CRAP load of money! I seen non-fit companies pay employees large salaries for relaxed BS desk jobs! I have friends with these LUSH/Plush careers getting paid $80,000 to answer the phone Monday – Friday 9 – 6pm for an Executive.
Anyway I asked to pull my application with team Crohns & Colitis for the west cost after I was disappointed in the way the funds are spread out. So instead they keep sending me donation forms! Asking me to join the race for the cure which is a $1,750 per a person donation or fundraiser! So if they find a cure with those high paid employees of the C&CF get paid anymore? Someone is cashing in on a disease that I and many people are faced with everyday! Not joking I feel the C&CF should be provide toilet paper to everyone that has a flare up! I’m up to 1 roll a day without a flare up and it’s not like uncle sam lets us write off toilet paper!
Look if I’m going to donate $100 or $200 I would rather just hand over a check to a fellow Colitis fighter that needs it to pay his or her medical bills, medication or even toilet paper then give it to the C&CF! I’m upset that this non-profit origination is not helping the people without insurance or jobs…It’s finding a cure and really are they?
I mean give me a break!
