43 year female, full-time employed, married, 2 children 14 and 3. Never had any stomach/intestinal problems before. This is REALLY effecting my life, constantly worried that a bathroom is available
Officially diagnosed with UC in 2008 (after giving birth to my second child) after the first colonoscopy but the GI doctor suspected it in 2007 during my pregnancy.
Symptons: Bloody stool, lots of mucus, urgency (loose stool only when aggravated by something else), exhaustion, pain in feet, hands, and sores on my scalp.
LOTS of stress in my life… 2002 brain surgery, 2003 spinal surgery (now missing the T1 spinal bone, which totally restricts my ability to do fun stuff, no roller-coaster, no skiing etc, otherwise i might literally loose my head), 2003 diagnosis with sarcoidosis, 2005 death of dad, 2006 death of father-in-law, 2007 miscarriage and through the entire mess addiction problems with family members .
Very active between April 2008 – Jan. 2010 (i could not hold my baby because I had to sit in the bathroom or RUN TO IT)
Remission Jan. 2010 – May 2011 – went on a trip by myself to a wedding in Europe, Flare was really bad – but when i returned i was miraculously healed.
It has been active again since May of 2011 due to a major dentist procedure rootcanals on 2 teeth. Since then it has been pretty consistent,, running to the bathroom shortly after i get up, and several times thereafter (usually ~ 5 times a day) then there are the days when I go up to 20 times a day especially when i have another problem, like a bad cold… always makes my colon even worse.
I have NEVER been to the hospital for that.
I had to already change my life by finding a job close to my house since sitting in traffic and commuting makes me just CRAZY, and the need to use the bathroom is overwhelming, I already sat at the side of the road and also visited several jon-dons on construction sites!
Everyone on the forum seems to go to the hospital – what is your criteria?
Also, do you all LOOSE weight, i continue to pack it on, therefore no prednisone for me,
started with 4x week exercise now, but working/being a mother/having a house there are only so many hours in the day…..
Food doesn’t seem to make a difference… have not found any pattern.
Medications currently taken: Canasa, Hydrocortisone enema, Mesalamine tablets (9 per day)
written by Sabine
Submitted in the colitis venting area