Current Colitis Symptoms:
Loose stools, diarreah sometimes, urgency, frequent bm, sometimes with bleeding.
Hi,
My name is Julie.
I’m 34 years old.
I’m happily married and a mother of two bright children.
I was diagnosed with uc 7years ago.
I live in sunny OC California.
I used to love meeting friends, having good foods, and just hanging out. It’s hard to do it anymore, b/c of uc is controlling my body. I’ve been also suffering with other symtoms lately, stay home most of the time.
Julie’s Story
Hi,
I’ve been visiting this site for a while. It’s my first time posting, I would deeply appreciate any advices, opinions, and etc. I’m thinking about getting j pouch surgery. I’m meeting with a surgeon(Dr Ng in OC) in two weeks.
Just let you know where I am.. it’s been 7yrs since I was diagnosed with ulcerative colitis. First few years I was doing good, then past 3 years all the medication(including all the biologics) stopped working. I’ve been trying to control symtoms with SCD diet and supplements.(currently on Asacol HD) It’s somewhat working, but still have 6-8 bm a day, sometimes more or less. Mostly loose, sometimes somewhat solid, depends on what I’ve been eating. Some urgency, sometimes with bleeding.
It seems enough already to put my life on hold, but I’ve been suffering with a constant cough past two years as well, it started when the uncontrollable flares started and caused me to lose a lot of weight. It starts during the cold season and stays 6 months, this year the coughs began in July. Doctors can’t figure out why.
Also I’m having lots of body aches here and there. My knee and ankle feel extremely weak, sometimes it’s hard to get up and use the stairs. I feel sick and weak most of the time, it’s very hard to go on with my life.
Lastly this concern is for ladies.. I’ve been having UTI several times over the summer, in June and July. Got better after antibiotics, but still feels uncomfortable time to time. Never had UTI before, even when I was in worse condition.
So my questions are:
1. How serious was your condition before you decide to do surgery? (symptoms, number of bowel movements, etc) I read lots of post surgery stories and seems like most of them are having 6-8 bm, similar to where I am currently. I’m sure it’s very different in condition wise.
2. Did you have any of these symtoms(body aches, coughs, UTI, etc) before surgery? Were they gone after the surgery? Are you feeling healthy and happy with j pouch? Can you carry on with your daily life?
I’m so sorry for making it so long.
I’m a mother of two and need to get healthy. I don’t think I can go on with feeling sick all the time. My life seems like it’s on hold. Please help me.. any input would be appreciated.
Thank you so much for being patient and reading my story.
Medications So Far:
Asacol HD
6mp
Uceris
Remicade
Humira
Entyvio
Prednison
written by Julie S
submitted in the colitis venting area
