Ulcerative Colitis Tips


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Update #3 – 3 Months Since Colon Removal Surgery

here are my previous postings…

Right after colon removal surgery

1 Month after Colon Removal Surgery

2 Months after Colon Surgery

 

My Current Status after Surgery:

Hey all! It’s been almost 3 months since my surgery and I am up to 148 pounds and feeling great! I have a lot of things going on right now which feels great because a month or so ago I was bored with nothing to do! This Saturday, May 21 I will be walking at my graduation from CSUSM and then we

ileostomy bag

Curtis with his T shirt and ileostomy bag

will be having a graduation party the following day, which is very exciting considering that around January and February I didn’t know if I was going to be able to walk at my graduation.

During my time off from life and from school (because I have 2 more surgeries to go) I have found myself with a lot of free time. I can’t really get a job yet so I wanted to find something that I could do that might also make me some money, so I started making T-Shirts! I take cool fabrics and cut them out and make pockets to put on blank t shirts. I made a facebook fanpage with all of the stuff I have made so far and I have gotten a lot of interest from my friends and family.

Here is the page:

http://www.facebook.com/pages/C-Cik-Pocket-Tees/200261676675707

Let me know what you think!

 

This past weekend, my family and girlfriend participated in the Take Steps walk for the Crohn’s and Colitis Foundation in San Diego. It was my first time doing any sort of walk like this and it was cool. To be honest, I never expected to be walking for something that had to do with myself, because I have been healthy for my entire life so it was a good feeling to see how many people were there to share the moment with. A lot of people donated money as well which is always good in the fight to find a cure for this disease that we all have suffered from and that no one should have to go through.

 

Anyway, that is my update so far. I will be having my 2nd surgery in 2 1/2 weeks which I am looking forward to, but then also not looking forward to. I have gotten used to feeling normal again (even though I have an ileostomy right now) so it’s going to be hard to have to go back to the hospital and be in there for a little bit while I recover from the surgery. But, it’ll be one step closer to being back to a new normal and being all connected with my J pouch in place.

Curtis, Girlfriend, Brother

Brother, Girlfriend, Curtis, and Pops Racing

Hope everyone is doing well!

-Curtis




2 Responses to Update #3 – 3 Months Since Colon Removal Surgery

  1. SerenityNow June 1, 2011 at 6:14 pm #

    Thank you so much for posting your on-going story. I was diagnosed last September at a much older age and one that is very atypical for the disease. I have not done as hoped in that we cannot get me into remission. Next step is Remicade. If that doesn’t work for some reason, your postings have helped with the mere thought of facing surgery. I am so thankful I found this website a couple of days ago. I don’t feel so alone anymore.

  2. pernita June 29, 2011 at 12:56 am #

    hi curtis!
    i have been reading your posts and was getting mentally prepared for surgery myself as it was the only option left .i got it done on 31st may and now recovering from post surgery .you are a great help ! i was suffering from massive edema after surgery and that made me very depressed but some how after 15 days of carrying 25 kgs of water around in my body i went in for homeo pathic treat ment and became free of all water retention in just a week.as i was on steroids for last 4 years my healing process is very slow . i want to ask you few questions 1) did your appetite became really low after surgery? 2) were you suffering from fevers and body pains ? 3)stoma and skin around it itched really bad and some point of time? plz if you find time to answer these i will be grate full.
    pernita

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