Ulcerative Colitis Tips


One of the 15,000 ulcerative colitis folks using the site adds:
"Like many UCers I have spent many hours trawling the internet googling the condition and came across your website a few years ago. I read your ebook and really liked your honesty and humour. As everyone says your positivity is so encouraging and now this is my go to website when I'm thinking about UC. Thankfully my symptoms are pretty much under control at the moment but just wanted to say thanks." Kate

UPDATE: 2 Weeks Post Takedown Surgery

Introduction:

Here I am a little over 2 weeks post takedown and I couldn’t be happier!!!!!

 

The Takedown Surgery Story:

To be exact I am 18 days post takedown surgery and I am feeling so so good! I’ll start from my surgery though just to give you my whole experience.

Takedown surgery was September 21 in the morning and I was in and out of surgery in about an hour (much different experience than my previous 11 hour surgery). I woke up in the recovery room and actually stayed awake the rest of the day (instead of waking up in my room not knowing how I got there). I felt good, looked down for the first time and saw a bandage on my stomach….and no bag! What an interesting moment. I had been living with this bag for about 7 months and it had become a part of me so it was weird to not see it when I looked down. And no CATHETER!! I pleaded my surgeon not to put one in since it was a short surgery, and she was nice enough not to. WOO HOO! Anywho, just chilled in my bed that whole day and made sure I went pee just to show

colon takedown surgery

1 day after takedown surgery

them that I could so they wouldn’t have to put a catheter in when I was awake….now THAT would hurt. Next day I was up and walking around like normal already, a lot different from my previous surgeries. Got start ed on clear liquids that day and my bowels woke up that night and I had my first bowel movement in 7 months at 10:20 pm!! I called my parents because I was so excited (they go to bed at like 8:30 so it was a big deal). A couple more trips that night and the next morning. They gave me some solid foods to see how that went and it was fine so they sent me home on Friday (surgery was on that previous Wednesday). I was so excited to get home but I knew that things hadnt even started yet.

I stuck to a bland diet for the next week or so, but not too bland because I need some flavor in my life! The next 4 days after getting home were the WORST! I was going to the bathroom about 24 times in a 24 hour period and my butt was ON FIRE! Not having stuff pass through down there for 7 months really gives you a lot of catching up to do once it starts working again. Those days were miserable because I got no sleep and I couldn’t do anything. It felt like UC all over again, BUT there was no pain in my intestines so I just kept on thinking about that, I was cured and this would only be temporary. I started to feel better about a week after my surgery and then each day kept on getting better. I left the house for the first time on October 1 to go bet on a horse….funny story…..My Dad is a swim coach who goes by the name of Sickie and one of his swimmers owns race horses and he just bought a new horse this past May and named it after my Dad. So Coach Sickie (th e horse) was having his first race at opening day in Santa Anita and we wanted to go make some bets and watch him race, but didn’t want to drive 3 hours to watch in person, so we just went to the off track betting at the Del Mar racetrack to watch and place our bets. That was my first time out of the house. We met up with the owner of the horse and placed our bets. Well lets just say that my family walked away with about $600 more than we came with! Here’s the video that my dads friend shot while we were there….you can hear us screaming towards the end….remember, his name is Coach Sickie…. http://www.youtube.com/watch?v=ctqTlKEoI30&feature=related

Anyway, each day after that has been better and better and better. I am only waking up about 2 times at night and maybe going 5-8 times a day and I am eating everything I used to, slowly introducing new things to see how it goes and it has been going great so far. Now I am just waiting on my incision to heal! It looks pretty gnarly, take a look!

scar and incision from ostomy

Waiting for the Incision to Heal after Takedown Surgery

foot massage in hospital bed

Getting a foot massage from my girlfriend in the hospital

Happy Curtis

I can’t wait to be able to surf and play soccer again. Soccer has been the thing that I have missed most because it was my whole life before this, and I can’t wait to get back into it. This year has been quite a year and I will never forget it. It was such a life changing experience and it’s time to start my new life. I am so thankful for my family and friends who have been there and supported me through this whole thing and I’d like to thank Adam for making this site possible. I found this site when I still had UC and was so grateful that I did because it gave me a place to connect with others all over the world who were going through the same struggles that I was. I will keep you all updated on everything as things progress. I can’t wait to be able to start my new life! I need to get a job first……haha.

Medications:     NONE / NADA

This Story:

Submitted by Curtis in the Colitis Venting Area

 

You can read all of Curtis’s stories here:  CURTIS STORIES




j-pouch, surgery, takedown surgery

10 Responses to UPDATE: 2 Weeks Post Takedown Surgery

  1. nichole October 12, 2011 at 11:18 am #

    Wow what a great story! But Im not sure I understand? If you had everything removed then how did they put it back together? And does that mean you still have UC? They can some amazing things now a days!!!!! Best of luck to you!

    • Curtis October 12, 2011 at 2:55 pm #

      They took my colon out in February and made a J Pouch inside of me out of my small intestine. I no longer have UC!

  2. Hopskotch October 12, 2011 at 4:20 pm #

    Woohoo! Congratulations and Many Happy Horseraces!

  3. Dede Cummings October 12, 2011 at 7:13 pm #

    Hey Curtis–pretty gnarly scar! yikes. Mine was really big, right down the middle…(had partial colon and terminal ileum removed for Crohn’s disease in 2006–still in remission!)

    You think you will never walk again! You are dong so well, I can’t believe it—hang in there! I am playing soccer (not at your level, haha!), but I am hiking the whole length of Vermont, 273 miles, and ran my first half marathon (Adam and I both did Team Challenge!)… So, life after surgery rocks. Be careful of your diet, get plenty of rest, as it takes around6 months to fully recover. I still keep a food journal, and take vitamins, and stuff…. Be well.

  4. Cassandra
    Cassandra October 12, 2011 at 8:50 pm #

    Curtis I’m so happy for you! :) It’s so great to hear of another success story, and I hope you keep on healing as well as you have :)

    I have my first surgery to remove my colon in a couple short months, and I think you know where it goes from there…. I only hope it will be a smooth of a transition as your latest surgery was!!

  5. Trina
    Trina Gutierrez October 13, 2011 at 5:23 pm #

    Thank your for the inspiration. I’m 32yrs old I’ve had UC for about 8yrs now and every year my flare ups have seemed to get worse. It’s nice to see that there are happy stories out there for the tough times that we go through. Can I ask where you had your surgery? I am in orange county and am being treated at St. Joseph’s hospital in Orange. From your story it seemed like your in SoCal.

    • Curtis October 15, 2011 at 3:16 pm #

      Hey Trina,

      I’m glad I am an inspiration to you. I had my surgery at Thorton Hospital at UCSD. My docters and surgeons are AWESOME! My gastro doc is William Sandborn and my surgeon was Sonia Ramamoorthy. Good luck with everything!

      • Jonathan November 15, 2011 at 9:38 pm #

        Curtis, I noticed that you had your surgery at UCSD. Dr. Ramamoorthy is also doing my surgeries at UCSD. I have had my first surgery and I am going in for the jpouch creation next month.

  6. Rebeka
    Rebeka November 14, 2011 at 11:03 pm #

    I am so happy for you! Reading your post, I could feel how excited and relieved you were. I also can’t wait to be active again. There is so much hiking to be done..

  7. Judith August 26, 2012 at 11:21 am #

    I’m so glad I found this post. I’m in day 3 post takedown surgery and feeling so miserable. The first two days were great but since 3am this morning I’ve been on the loo every 45 mins or so. Exhausted and filled with chronic UC memories. So thrilled this is just the way it is. I can get through it knowing that. Thanks for posting.

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