iHaveUC.com's FREE email list, Join over 15,000 other subscribers

Ulcerative Colitis in Saskatchewan

colitis-in-saskatchewan

Meet Graham:

Recently diagnosed.I am 28 years old from Regina, Saskatchewan Canada. I work in politics and am compete in rodeos as well as other sports like slopitch. I like being in the country, riding horses, and having fun.

AND…

I miss drinking beer.

Current Colitis Symptoms:

I am currently experiencing bloody diarrhea although only 3 or so of my 7-10 bowel movements/day will have blood. Other symptoms include cramping and the dirty old sweats when i am sleeping! Any suggestions how to deal with the sweats?

Colitis in Saskatchewan

I started noticing small traces of blood in hard stool about 2 months ago. After about a week it turned to bloody diarrhea and has been ever since. I haven’t had a solid sh*t for over two months. I went to the doctor after the blood didn’t go away for a week or so and they started me on some different pills and took a stool sample. I was on 250mg metro a day for a week and saw no change, then they put me on Cipro and did more stool samples to no avail. The third week they doubled the Metro dose but it obviously didn’t do any good. Finally after about a week the Dr referred me to a specialist that does the colonoscopies and I was scheduled for a Flex-sigmoid.

When they did that they knew immediately that it was UC. Biopsies have confirmed. I wasn’t under any anesthesia or anything for pain when I had the sigmoid and because I was so inflamed it was incredibly painful. The doc wasn’t able to go as deep as he would have liked so I am going back in about 3 weeks for a full colonscopy. I dread it very much. I hope it is easier when they sedate you?!?

I lost about 20 lbs the week before the sigmoid until now but for 2 weeks I wasn’t able to eat much because it would cause so much pain to digest. I would have a yogurt or a little bit of soup each day. I look like a different person. Tough way to lose weight but I wouldn’t mind keeping it off now.

I saw the Gastro specialist right after the flex procedure and he started me on 50mg a day of Pred going down by 5 mg a day each week. I am now 3 weeks since the diagnosis and am starting to feel better. The Pred took a while to start working but is working very well now. I have 2 or 3 bowel movements in the morning and then go to work. I have a few after supper and through the night but i am able to function fairly normally right now. You are still always searching out the facilities but i usually don’t have to use them. I have been going to work a little later to miss rush hour. I dread being stuck in traffic and having to go. I have even been able to make it through whole work days without having to go sometimes which has been a positive change.

I am trying to stay positive and deal with this disease on a day to day basis. My girlfriend has been a great help and I seem to feel a little better each day even with less Pred each week.

I have a few questions for fellow UCers out there.

  • Should i be concerned that I still haven’t had a solid movement after 3 weeks of Pred?
  • The majority of the diarrhea i have during the day has no traces of blood, usually just the morning and evening movements. Does the blood eventually go away all together?
  • Will the colonoscopy be easier with sedation and reduced inflammation? I don’t know if i can handle pain like the flex again.
  • Anything to combat waking up soaking wet at night and anything to help the cramps in the evening after supper?
  • I have been trying to “eat healthy” as the GI told me but I don’t seem to feel different no matter what I eat. Anything thing to avoid or is it more a try and see type process?

I have had lots of pain at times (not for the last week or so thank goodness). I don’t know when the appropriate time to go back to the dr is. I just chalk it up to “having a bad day”. I don’t want to keep going to the doctor for nothing but also don’t want to be stubborn and stay home and fight pain and do more damage.

Thanks UC’ers.
KCCO

Medications:

On Predisone now (35mg a day for this week) and down by 5 mg a week. I start an anti-inflammatory Jan 1. I can’t remember what it is called.

written by Graham

submitted in the colitis venting area




Saskatchewan

8 Responses to Ulcerative Colitis in Saskatchewan

  1. ANN POTTER December 26, 2012 at 2:15 pm #

    try and keep off fruit and veg it may not be that but it is for me

  2. ANN POTTER December 26, 2012 at 2:17 pm #

    good luck

  3. joanna December 26, 2012 at 2:47 pm #

    prednisone is a tough one so you’ll be experiencing the hellish side effects until you are off and most likely for months afterward… depending on whether it causes permanent problems. i usually changed my clothes twice during the night and would have to switch between my bed and couch because everything was always wet.

    the colonscopy will be much easier with sedation. i’ve been awake for a few and i prefer to be asleep. i’ve never had pain during the awake ones but i can only imagine how hard it was for you.

    bleeding comes with flaring so when you are done flaring, you won’t see blood anymore.

  4. Maggie December 26, 2012 at 6:47 pm #

    Hi, Graham. I had a sigmoid while not medicated and like you, it hurt like hell. I was in a mild flare then but the invasiveness of it made me worse for a while. But to answer one of your questions, no the colonoscopy won’t hurt because of the sedation, but the prep is kind of a pain in the ass. It’s not always easy to find a medication that helps on a permanent basis but some will get you out of the flare but the best way to mantain is diet and certain supplements. Good luck, Graham.

  5. bev December 26, 2012 at 7:20 pm #

    Hey Gaham,

    The colonoscopy prep is harder, but the procedure is a snap. You should feel nothing, because, yes, you are normally sedated for that. If you have teh choicem, then take it! I remember how painful the flex was…I had it once, and whoa!! Never again, thank you.

    When the bleeding disappears completely, it typically means that you are in remission. Like Joanna said…no more inflammation usually means no more bleeding. Please try a good 50+ billion probiotic. I am in remission thanks to that and fermented L-glutamine powder. It actually stopped the bleeding altogether. I am on no meds at all any more because they do not agree with me. I was on asacol for 13 straight years, but it just made everything worse, in my case.

    By the way…I also take 4000 units od vitamin D every day, with food with fat in it, because it is fat soluble. Vitamin D is graet for inflammation.

    Cheers, and good luck:)

  6. Adam
    Adam December 27, 2012 at 9:49 am #

    Hey Graham,

    Should i be concerned that I still haven’t had a solid movement after 3 weeks of Pred?

    ——— I wouldn’t freak out too much on that. Solid hardcore logs sometimes take a while. As long as you are noticing overall improvement, that’s the main thing. This disease is full of ups and downs, sometimes hour to hour and it can be really a mind frick, but longterm improvement is the key.

    The majority of the diarrhea i have during the day has no traces of blood, usually just the morning and evening movements. Does the blood eventually go away all together?

    —— The bleeding for sure can go away completely. It can also take time for that to happen, but I really think the answer is a big fat yes that it is entirely possible. Super great when it happens too because you’ll notice you’ve got more energy than before, and your mind stops racing when you see that stuff, cause come on, who the heck wants to be checking out red toilet paper for months on end.

    Will the colonoscopy be easier with sedation and reduced inflammation? I don’t know if i can handle pain like the flex again.

    —– I would definitely have to say yes. If he sedation is done properly, you’re literally out cold in seconds (maybe even “second”) and then you wake up once its through. I’m no expert on it, but i’d think its fair to assume less inflammation=easier recovery as well.

    Anything to combat waking up soaking wet at night and anything to help the cramps in the evening after supper?

    ——- Here’s a post about night sweats you should check out: http://www.ihaveuc.com/now-what-night-sweats/ I wrote a comment below it that will give you an idea as to what i was up to when the nightime pool party swim hit me a while back.

    I have been trying to “eat healthy” as the GI told me but I don’t seem to feel different no matter what I eat. Anything thing to avoid or is it more a try and see type process?

    —–I’d avoid dairy, alcohol, and breads to start out with. I think a good handful of UC’ers would agree that stuff can tear anyone a new you know what, especially when symptoms are present.

    I wish you the best G, and best of luck with the next steps, you’re going to get through this, and 2013 is going to be much better for you for sure.

    –Adam

  7. Hammad
    hammad December 27, 2012 at 7:33 pm #

    hey Graham,
    hopefully by the time u read this you are feeling a lot better. Hard stools are so much better then loose stools…i feel a lot better when i can have a solid one…it gives me that DONE feeling. Which other website can we talk about our stools but this right. But as long as your bleeding stopped and you still having loose stools its not much to worry about. But i have always noticed some symptoms while going down to about 5 mg of prednisone but dont freak out….give it a week or so..hopefully things will be fine. Also this real good herb i discovered is called golden seal extract …u get it from wholefoods it helps with bleeding….have a good new year and hopefully we can all find some relief in the coming year ..take care

  8. Graham December 29, 2012 at 10:02 pm #

    Thanks everyone. I had a relatively symptom free Christmas…things are looking up. I appreciate all the feedback as I am new to this. Good luck.

Leave a Reply