Ulcerative Colitis Tips


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Ulcerative Colitis Blues

YahairaMeet Yahaira:

I was just diagnosed with ulcerative colitis last week and I’m suffering a “flare up”. I’m 27 years old with three kids and two foster kids, and of course I’m devastated…I don’t know anything about UC, don’t know what to do, how to feel, what will happen, and I’m a bit afraid. I’m not looking forward to Jan. 9 (my first gastro. appt.)

Some more about me:

I am a loving caring person I try my best to do my best at everything put in front of me to do I really don’t have my own personal hobbies just mainly dedicated to taking care of my kids and give them the best life I possibly can. I love these kids. They are my life day in and day out!!!

What Are My Colitis Symptoms?:

Well, right now I’m experiencing the worst “flare up” its almost been a month with the same worsening pain diarrhea, blood in stool, abdominal pain, back pain, loss of appetite, hunger, fear of eating.

My Colitis:

Yey there everyone, well… my name is Yahaira (ja-hi-ra) just in case your stuck ;) I’m 27 yrs. old and I have 3 beautiful kids and two wonderful foster kids. I was just diagnosed last week with colitis I haven’t been to a specialist yet. So I’m very new to everything and very burdened by this news being that I have so much going on in my life at this point. I’m so devastated and feel like I have no one to talk to about what I’m going through the pain, the constant bathroom breaks, the fear of eating, the blood, the feeling of not having a life anymore, confined to my home, my kids going through it as well, the guilt of not being able to do more with myself, people demeaning what I’m going through like its minor and I’m making a drama of it. ugh… I’m just so glad I found this website where I feel so at home where people know how I feel and know what I’m going through its a huge comfort.

I don’t know too much about this disease only that not taking care of it can lead to death as my father did his case was very serious in fact he ultimately died of colon cancer it only began as colitis… so I’m so afraid, so terrified. I’m just so blessed to have the support of an awesome mother and fiance an awesome church family who prays for me and this place to feel some comfort. I just wanted to tell a bit of what I’m going through. please make any suggestions like foods I can eat or what I have to look forward to in the future. any comments to help, words of encouragement. please and thank you in advance so much.

Colitis Medications:

right now I’m only on bentyl, tramadol for the pain, vitamins

written by Yahaira

submitted in the colitis venting area




mother

6 Responses to Ulcerative Colitis Blues

  1. Adam
    Adam December 10, 2012 at 7:33 am #

    Hi Yahaira,

    I’m terribly sorry that you’re in the middle of some of the tuffest times that UC has to offer. The early days are almost always the hardest, but you’re going to get past these early days post-diagnosis and on to better living.

    One thing I’d highly recommend, with regards to your upcoming appointment with your GI doctor is start taking notes. Start a little notebook, and write down all the questions you come up with.

    Don’t feel like you should know every single thing about UC right now. Nobody knows this disease right when you’re diagnosed. But over time, you’ll know a ton. But take small steps.

    If you have a list of questions written down for your first doctor’s appointment, and then simply pull it out when you meet the doctor, you’ll be amazed at how many answers you’ll get, and when you leave the appointment, its just going to make you more satisfied. Good GI doctors are as much educators to their patients as medical practitioners, and people like us need to take advantage of that.

    I wish you the very best in the coming weeks and months, and thank you so much for sharing your story.

    -Adam

  2. Paul Willoughby December 10, 2012 at 8:16 am #

    Hi Yahaira,
    I second what Adam suggests. Also, when you have some time, do a little research about the disease and the various medications. Best thing you can do is be informed and know what questions to ask. I hope that they get you on some meds that will straighten you out. I have been sick for more than 10 years and have found a way to cope. You can too.

    Paul

  3. Amy December 10, 2012 at 8:27 am #

    Hi Yahaira,

    Definitely also recommending what Adam said. I was just diagnosed this summer with UC at age 34 – hospitalized, blood transfusions – it was scary finding out I had it but also a little relief (after being sick for a month). Thankfully I responded to the medicines my doctor prescribed.

    What made me feel better in the beginning was getting more info. I spent a lot of time on the Crohn’s and Colitis Foundation of America website (www.ccfa.org). They have a special website for newly diagnosed people http://www.ibdetermined.org/ – where there are different sections and you earn “badges” for learning more. It sounds silly (and I don’t work for them or anything, I just found it helpful!), maybe, but I learned a lot and felt better prepared to talk to doctors. As far as diet – there are lots of different diets people use (it’s up to you – even talking with my doctor and dietician they really didn’t help much – I had to choose my own way) – but at first, in an active flare – what helped me the most was low-fiber (aka “low residue” diet).

    If you’re looking for more support online (outside of Adam’s site, which is very helpful) – there are even apps for your phone where you can track your symptoms (I tracked every bowel movement for months after I was first diagnosed… LOL… now I’m still observant but I am not obsessive). There’s one called GI Monitor which is really good (it’s free, too). And there’s a website called Crohnology (not just for Crohn’s – plenty of UCers there, too).

    Best wishes for getting out of your flare!

    -Amy

    • Yahaira
      yahaira December 11, 2012 at 7:09 am #

      Thanks so much guys I have one more question.. I was given ultram and I have been taking it for the pain however now I’m constipated. Should I stop taking it?

      • Amy December 11, 2012 at 8:11 am #

        Glad we could help! For any questions about your medications should call your doctor – it’s probably the best bet. I hope you feel better soon!

  4. Marq Rich
    marc December 21, 2012 at 8:15 pm #

    hey yahaira my name is marc ive been through all the meds possible for this disease i can guide you on what to ask your doc and what you can do.ect. i dont be on here much and u might need a question answered urgently so feel free to call me anytime, i know exactly what your going through .. call block if you like 347-351-7694 im in the ny area and good luck if i dont hear from u

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