I have been on varying doses of prednisone, 40mg to 20mg and back.
About 15 days ago, I started getting horrific pain and muscle spasms across my chest and around my mid back. I even went to the ER thinking I might be having a heart attack.
Thankfully, that was not the case.
Saw my gastro doc last Monday or a flexible sigmoidoscopy and 3 more biopsies. Told him about the back and chest pain and he sent me to an orthopedic doctor. After xrays, he discovered a sever fracture in my spine at level T5. I had to have an upper body brace made to fit my body. I will be in this for 8 to 10 weeks in attempt to avoid surgery. He is completely convinced that this fracture is prednisone related. Studies show that within one month of starting prednisone, the risk of spinal fractures really increase.
I was wondering if anyone else has had bone issues related to prednisone use??
I am hoping, if my biopsies are good, my gastro will start reduction of this med. Just really interested to know if any of you have had bad side effects from prednisone. The one thing I am frightened of is the my ulcerative colitis symptoms will start coming back with reduction. Last time I tried 10mg a day, they did. I have been on Lialda, Prednisone and Bently since my diagnosis. I’m not sure if the Lialda has done much of anything. The prednisone did help the symptoms, however, I hate the side effects. Gastro is considering Humira if my biopsies come back with active UC. I also have a seizure disorder but have been seizure free for the last 8 years due to the implant of a vagal nerve stimulator. 2 weeks ago, I had a bad bread through seizure. Not sure if that wasn’t prednisone related either.
I am hopeful that I am heading into a time of remission. The past 6 days have been relatively quiet. Prior to that, urgent bowel movements up to 15 times a day, sever abdominal pain, some bleeding and mucous, and fatigue.
I am a volunteer at a big cat sanctuary in Wisconsin. I work with Tigers, Bears, Lions, Wolves and many other animals. I am also a non professional photographer.
Medications & Treatments:
I have added to my medical protocol 1000 units of Turmeric once a day, 1000 units each of vitamin B12 and vitamin D. Have been on low residue diet since December of 2015 and have really done a good job of sticking to it.
written by Marge M
submitted in the colitis venting area