Colitis Symptoms I’m dealing with Now:
Basic stomach pain,
Lack of ability to gain weight
UC for 23 Years and Counting
I love motorcycles.
I am currently 27.
I was diagnosed with UC at the age of 7. Actually had it from 4-5.
I’ve taken every med on the market, been in clinical tests, and as any long time patient knows, NOBODY can tell me anything I haven’t heard or been involved with in the past. From Dr. Linda Lazar at Le Bonheur Childrens Hospital and about 6 GI (specialists) hahaha… all the way thru self medication after learning how my body works. I’ve found over the last 20 years, that Prednisone, Deltasone, or one of the higher order gluccocorticosteroids is the most effective treatment for a flare up.
I’ve found that a routine is key. Waking up everyday at same time, eating at same time, sleeping at same time, etc… has caused my body to weaken my autoimmune response associated with inflammation. This in turn has allowed me to stop ALL meds completely. I was taking, Imuran, Lomotil/Atropine tabs, Prednisone,Tylonel # 4, Asacol, and a few others that I have gladly forgotten! Lol
If you have UC and are intimidated by your Dr., do as I did and tell them to take a picture it’ll last longer!
Also, remember it’s your body, you know how you feel and if it’s working.
No tests in any lab can tell me that it’s helping me when I know better. I had hid the fact I had UC for 15 years due to kids can be cruel. I would say I’m in remission even with the effects I still have today. I’ve spent easily 6-7 months in and out of hospitals over the years. I came within 8 hours of death due to dehydration from UC. Had I not managed to knock phone off hook and call Father, I’d not be here today. I couldn’t talk, walk, barely see, hold down nothing! I’ve been a guinea pig for the pharmaceutical industry for too long, I refuse to take advice of a doctor who has less experience with UC than myself. With roughly 23 years experience, that’s a long shot. Anyway, I’m going to stop ranting about UC and listen to all you beautiful people!
written by Clyde P
submitted in the colitis venting area