Tyraa’s Story

Meet Tyraa:

I am 33…. I have had UC since 2003….I work as a Rehab Tech….and have two wonderful children….i am trying to find away to take back my life…my UC

Colitis Symptoms:

I am currently having a “flare up” for about 3 weeks now…with the usual bloody watery stools….blood clots…pain in abds…god awful smell that comes from it….each flare up for me is different…this time i have to make sure I have a trashcan in front of me…cause i feel like I’m going to get sick….my mouth only waters….but so far…i never have gotten sick yet….my stomach is tender…bloated from time to time….different parts of my muscles ache….I’m tired…cold more than normal now sometime i eat a lot…other times…i wont eat anything..

Colitis Story:

I don’t know if this happens to anyone else…but its weird…as long as I am “not in my home”…that urge to go does not bother me.  I mean yeah, I feel bloated…have the pain in my abs and stomach….I have awful cramping that stops me in my tracks for a good 5 to 10 seconds before it stops….and I am just uncomfortable sitting…standing..etc…I have the worst smelling gas….and I always get nervous when I’m getting ready to pass gas….cause i don’t want to have an accident.

So far while out…have been very blessed….and lucky.

On my way home from work for the day….

it’s like my body knows…

It starts making what I call the “bubbling loud noise”…once I pull in the yard…I am rushing to get to bathroom….after my first bloody stinky….watery stool….I try to get whatever i can done…cause I know time is not on my side….I am usually in the bathroom off and on all night….and waking up for good in the morning….i know i need to get up earlier than normal…cause i am going to be in the bathroon for at least 30 minutes…No one in my family has UC…so I don’t really have any inside info on how to get it under control…after all these years….i will do good for about 8 months…than i’m right back with having flare ups…

No two flare ups for me are the same…

Seems like pain…symptoms etc…gets worst…as I get older…but butt hurts more…my right leg goes numb now…from using the bathroom so much…i not getting as much sleep….the cramping…pain wakes me up…and i pretty much know…I need to start heading to the bathroom….i get so mad…cause the urge to go is so strong….and I’m running for my life to get to the bathroom…and it seems to be only a teaspoon full of stuff that comes out…along with air…the entire time….I am sitting there…i look down in disbelief….I’m up for like the 3rd time at night night for this…wow….but…its all part of my flare ups….

Where I’d like to be in 1 year:

In remission!!!!! again…but with more tips…recommendations…ideas….from other on how to control UC…or how to ease the pain from flare ups.

Colitis Medications:

I am Currenly on Asacol 400 mg 3 tablets 3 times daily….and have been on asacol since 2003…over the years my doctor have played around with the dose…but found this one to work better….as a matter of fact..it works sooo good that i do tend to back away from it for a while…the longest I have been off was 8 months without any flare ups…but within the 9th month…the flare ups returned…so i had to get back on the Ascol…as well add Prednisone…
Currently taking Prednisone…does not appear to be helping at all…i have also added probiotics n multivitamin….will just be glad when it is over,,,,,

written by Tyraa

submitted in the colitis venting area