My name is Katherine, I’m 28 years old and was diagnosed Oct. 2012 by a sigmoidoscopy test. I was having a “flare up” at the time so I had to wait until March 2013 to have my colonoscopy. In that time I was on 60mg of Predinose and had every side effect possible and just miserable. I stopped taking the steroids April and then they put me on Mercaptopurine and got horribly sick so they took me off. Im now been gluten free for the past two weeks and was feeling amazing until these last couple days been going to the bathroom non stop again. Hoping it will not be another flare up because the GI MD wants me to go on the injections and I really do not want to do that.
Some more about me:
I’m a very nice and hard working person, I have an amazing husband and daughter. I love playing indoor soccer and being active.
Currently on the asacol, probiotics and being gluten free. In the last day or so just started having loose bowls and going all day long again
Trying to Hold Me Down
UC has changed my life horribly…I got the first symptoms back in July 2012 when my daughter was almost a year old. My regular MD didn’t think it was anything and sent me to get a sigmoidoscopy and they could tell what it was right away. I did not know how severe it was and started taking the medications and following the doctors advice until Dec was really sick day after Christmas was hospitalized and they started me on the steroids. I felt great on those for awhile until all the side effects started. I swelled up so much people did not recognize me. I was in pain all over and could never sleep. Finally tapered of them in April.
I don’t mind the MD checking me all the time
but hate the pre-op of drinking the nasty drinks…
those are so gross!!
My family has been amazing and all agree to try and be off medications. Especially seeing all the side effects that they have caused on me. I feel like I’m missing out on so much with my family since I never have energy or feel well to do that much anymore. I really do not want to be on medications or injections…trying the gluten free diet first and my GI MD is pissed I wont go on the injections.I just wish there was more out there besides doctors just pushing medication in your face, I feel horrible on or off of them. I have heard horrible stories about the injections and they terrify me. If I get every other side effect I’m sure I will get everything from those as well. I would like to hear more about surgery and the injections. Or if the diet has really worked for people and recipes that are good and easy
written by Katherine
submitted in the colitis venting area