It’s been a long time since I’ve posted anything on this website. A lot has happened to me – I changed jobs, got married, lost a parent….. all these things are stressors and have affected me in one way or another.
Something Interesting About Lara:
I love to nap! This could be because I’ve got a chronic illness and I need more rest than the average person, but I will try to get a nap in whenever I can.
Let’s start at the beginning:
I was diagnosed with Ulcerative Colitis five years ago.
My husband has been very supportive throughout this entire experience, which I’m thankful for. We had dated 6 years before we actually got married (and have been married now for almost 2 years). I love my husband, but planning a wedding and actually learning to live with each other was difficult. We had never lived together prior to being married and I was nervous because I couldn’t “hide” my UC symptoms. Not that I think I did a good job of that before, but I was still nervous nonetheless. During that time I had increased frequency, not always formed BM’s, blood, some pain, etc. Once things settled down a lot of those things subsided, but not all the way.
Next, my mom gets admitted to the hospital out of the blue 6 months into my new marriage. She hadn’t been in the best health and I think the family thought she’d be there for about a week and would then go home. Only it didn’t work out like that. She was admitted for kidney failure and some other things – it’s a blur so I can’t remember it all. Her body couldn’t handle the dialysis and she passed away 3 days after her admission. That was a ROUGH time. It was sudden. I was heartbroken that I was starting this new phase in my life and I wouldn’t have my Mom to talk to. She was the one who took care of me when I was first diagnosed and throughout that horrible flare. My symptoms began to increase again. Stress will do that. I barely made it through the funeral – I had to run to the bathroom several times. My Dad became very worried about me and my husband made me rest. I saw my GI doctor and he didn’t add any medications, but wanted to do a colonoscopy.
I get the colonoscopy and not much healing is taking place. By now I’m on Remicade and Apriso. He wants to add Uceris and I start taking that. I hated Uceris – it gave me horrible mood swings, but I did notice some relief of my symptoms. I did a follow up with my doctor and he recommends that I see an IBD specialist when I tell him that my husband and I would like to start a family. He also adds Canasa to my regimen. I wasn’t thrilled about giving myself suppositories, but it did help. Though not all the way….
I work in healthcare and we had our annual state survey. It’s always unannounced and that left me working 12-15 hour days, not eating right, etc. Symptoms came back with a vengeance. The day after the exited I was scheduled to get a sigmoidoscopy. Looking back on it, I guess the timing was ok because my doctor could actually see what stress does to my body. And the stress showed some bad things – lots of inflammation and bleeding.
I go see the IBD specialist the next week and she recommends that I not try for a family right now. My body just isn’t ready. She also recommends I start on Rowasa enemas and do some specialized labs to see how I’m handling Remicade. She recommends I get off of Uceris, which I’m only too glad to do! She also categorizes me as high risk, so I now need to find a high risk obgyn when trying to get pregnant and care for me throughout my pregnancy. Lovely! All these results are forwarded to my GI doctor.
I started on the Rowasa and notice almost immediate results. Solid BM’s, no blood, 1-2 times per day….. Life was good!! I also did these specialized labs and it turns out that I’ve built up antibodies to Remicade. Fun! So it’s no longer effective and I get to start on Humira.
Let me first say that Humira sucks. I was prescribed the pen and it hurts. Truly painful!! I did my first dose today – 4 shots – at the doctor’s office. It was rough. But I’m at least proud that I was able to do it myself. Right now I feel tired, but I did just get a mega dose. Hopefully this will help get me healthier. I’m to give myself 2 more shots in 2 weeks and then 1 shot ever other week from here on.
1. Has anyone been on Humira while pregnant?
2. How has pregnancy been with your UC in general?
3. Any issues in getting pregnant?
written by Lara
submitted in the colitis venting area