Hi, I am a 34 year old mom of 2 boys who ages 8 and 6. I live in Amsterdam, but am originally from the UK.
Some more about me:
We’ve been living in Amsterdam for 10 years! I love living here, it’s more like a village compared to London, and a great place for kids to grow. I love biking around the city and being outdoors with my family. The city is full of great cafe’s that I love hanging out at with my friends, meeting them for lunches and coffees I have the liberty to do that as I am a full time SAHM.
loss of appetite.
light headedness at times.
To Prednisone or Not to Prednisone
Well I was diagnosed with UC in 2010, a few months after my father died, it was indeed a trying time for me, and I guess something had to give… and it was my colon! FYI My father died of colon cancer.
Well on a brighter note, I was given pentasa and all was well… until november 2012, right around thanks-giving AND we were having friends flying in from the US to celebrate thank-giving with us here in the Netherlands. Well with beclomethasone enemas and diet changes I managed to get to remission by early January.
Unfortunately, I am back in a flare for over month, I think it was triggered by a flu/bug that I caught, well then we moved houses so I didnt really pay attention to it and yes stress levels were high. Anyhoo, my symptoms REALLY deteriorated 8 days ago, with severe cramping, bloody chronic d, I’ve lost about 10kg and have been in bed since. My doctor has prescribed me prednisone, which I have here sitting on my side table… but I have not taken it… it is to start at 40mg and ment to be a 12 week course. I had been trying the beclomethasone enemas for about a month along with my pentasa 2g, 2x a day, but no joy.
I really didn’t want to take the pred, have been trying the natural route, recommend by Bev taking the 50billion probiotic, l-glutamine before lunch and astaxanthine after. I’ve also been eating pretty limited, and have gone gluten free since the ‘bad’ flare, so about a week. I’m currently eating yogurt with blueberries in the morning, chicken broth for lunch and some salmon/chicken with spinach and rice for dinner. My d is still bad. My appetite is at zero at the moment, and I just feel comfortable when I’m lying down as then I dont feel any pressure on the colon or urgency. At this moment I am feeling like dropping all the meds and trying a FT at home, I’m getting desperate.
I’d appreciate any advice, should I just take the prednisone so I can start functioning properly??
Pentasa 2g granules, 2x a day
written by Esme
submitted in the colitis venting area