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The Worst Colitis Flare – Urgency Fresh Blood and Cramps

Introduction:

Hi all, I am Julie, 48 years old, usually very active, I live in the UK and am a deli chef full time. I have 3 beautiful grown up children and 1 grandaughter. My life consists of regular exercise, socializing with friend and frequent travel.

british mom with colitis comic

My Symptoms:

I am currently in the throes of a severe flare up, which seems to have its own mind and has decided it’s here to stay. I am experiencing the urgency with fresh blood lots of it too, cramps, weakness to mention but a few. I actually pooped myself in the street yesterday it was horrendous. I don’t seem to be getting any better!!!

I was diagnosed with colitis in 2002

and have been quite lucky

even though I have a non strict diet

and drank alcohol most weekends.

Until now!!!

I was on holiday in Spain when I got the first sign i was in a flare. I still had 3 weeks left in Spain so the UC manifested itself rapidly. As soon as I got back to the United Kingdom I started a 8 week course of pred steroid starting at 40 mg tapering to 5mg. It was clear after 3 weeks nothing was changing. so after the butt camera revealed a ugly granular colon I was hospitalized on IV steroids for 5 days then home back on oral at 40mg down to 5mg. Two weeks on I feel wretched I am bloated beyond belief, tired due to lack of sleep, irritable, mouth sores and sick of seeing blood down the pot.

I have started some natural products, aloe vera, probiotic aciddiphilus, zinc, vitamin b, omega 3 and manuka honey, I just pray something changes soon. I have no energy can’t work and can’t be bothered I am coming up to week9 now and I am scared it won’t ever change.

Has anyone ever had such a long flare, is there light at the end of this long dark tunnel as I was told during my latest butt camera my colon was a mess and they considered removing it. I was so afraid, and still am as my symptoms have only eased very slightly but feel too afraid to seek anymore help for fear of them mentioning the dreaded colectomy. Being a single woman after my husband left me for a younger model, which i totally get. I would rather try keep my colon for as long as I can. I would like to wish all of you the very best living with this horrible silent lonely illness.

Where I’d like to be in 1 year:

Just healthy and happy nothing more

Colitis Medications:

Steroids oral and anal, mezzavent 1250mg 4 times daily, laxicol

written by Julie

submitted in the colitis venting area




flare, fresh blood, urgency

6 Responses to The Worst Colitis Flare – Urgency Fresh Blood and Cramps

  1. Bev October 14, 2012 at 2:12 pm #

    hello

  2. Bev October 15, 2012 at 6:38 am #

    Hi Julie,

    Hang in there with the probiotics for sure. Probiotics took me into complete remission! It can take some weeks, so don’t stop. I also had to add L-glutamine powder which took away the bleeding too.

    Also, alcohol is a NO NO. I learned this on this website…my doctor never told me. Also, no advil….only tylenol. Another thing that my doctor never told me! Thank goodness for this site. I believe that alot of little things can trigger a flare, and we aren’t even fully aware of what they are.

    CHeers:)

    • joanna October 15, 2012 at 8:13 am #

      bev, how much l-glutamine do you take every day? i’ve been taking it for a long time and it’s never helped my bleeding. i have tried amounts ranging from 1/2 tsp a day to 2 1/2 tsp a day. should i be taking a lot more?

      • Bev October 15, 2012 at 9:49 am #

        Aw, Joanna, really? I only take a scoopful (the scoop is about maybe a teaspoon(?)) per day. The scoop comes right in the tub.

        I assume that’s what stopped my bleeding…I took it for two days and the blood was completely gone! I don’t know what to tell you…I thought that stuff was the miracle that healed the colon. That blows my theory all to heck, doesn’t it?

        I have to admit…sometimes out of the blue, I get a little rumble in my lower gut, or even a faint bit of pain (maybe from stress or something I might have eaten), so I’ll take a lot bigger scoop of it for a few days…you know, so that the scoop is overflowing…and my colon calms right back down again! I swear, that’s how good it is working for me. Are you taking fermented L-glutamine in powder form?

  3. uma October 15, 2012 at 7:37 am #

    Hi Julie, There is always a light at the end of the tunnel. Hang in there. I had my worst flare in 2009 oct which went on for 4 months until feb. Now i am in total remission for the last 2 and a1/2 year.. The colon is such an organ that it can heal and
    carry on like before. I dont know what exactly worked for me. I started the probiotic Garden of life Primal Defense. And at the same time i was given a statin for my cholesterol as my LDL was a bit high. So here i am leading a pretty normal life.
    Take care and good luck to you.

  4. Polly
    Polly October 16, 2012 at 11:35 am #

    Hey Julie,

    Hang in there!!! My flare had me down for a good 4 months… things will get better… keep doing the Probiotics and the Omega 3… add Vitamin D and turmeric if you can… Glutamine is excellent too (thanks Bev!)…
    I had major bleeding issues, and I finally broke down and got a juicer and started juicing cabbage. After 4 days of drinking cabbage juice, there was a significant decrease in the amount of blood lost. So that’s something to think about. I know how horrible it is when you are so weak and discouraged from seeing all the blood… it’s so hard, but try to not let it frustrate you.

    I also say alcohol is a “no-no”… I only drink water, coconut water, and some teas. I am on an anti-inflammatory diet, which is a big help too…

    Hang in there, sending hugs from Minnesota! :)

    Polly

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