The Element of Freedom

Bio:

I am from Kathmandu, Nepal but am currently staying in Doha.  I am 32 and a mother of a 15 month old baby, I’m staying home from a long time due to Ulcerative colitis.  I love to travel.

Symptoms:

Extreme fatigue,Flare-up with blood in stools,stomach cramps,joint and muscle pain,lower back pain.

My Story:

HeIlo friends,I had a pretty normal life but i had eating disorders and was in College.I used to get fevers ,stomach cramps and went to a handful of doctors they thought it was amoebiasis and gave me anti-biotics.After a year of getting ill i had severe pain and cramps i was referred to Gastroenterologist and diagnosed with UC.The strange thing is i never noticed blood in my stool.Only the color of stools were blackish.In all the 11 years of having UC i never had a normal life.I had extreme fatigue due to which daily activities became so difficult to do.I stayed home after countless trials to complete my engineering.In the first 5 years of having UC i had flares once a year which lasted about 1 month and it took 2-3 months to recover.I was hospitalized each time and given IV steriods,anti-biotics,Prednisolone and hydrocortisone enemas.I used to feel extremely weak.
In the next 3 years i had flares 2-3 times a year and all i used were Hydrocortisone enemas at night for about 15 days or a week depending upon the nature of flare-up.I would get well with this and was never hospitalized.  But i want to mention here that the food i was eating was mostly carbohydrates-rice.pasta,potato,chicken soup(clear),egg whites,chicken meat,very few kinds of well cooked vegetables and no fruit.The only fruit i ate were banana or strawberries(smoothies and occasionally).  Whether i was in remission i was eating the same type of food and during a flare it was even less than that.For the last 2 years and few months i was pregnant for the first year 2010 and that time i could tolerate many fruits,vegetables,in general i was eating better and had a flare only once which was taken care with enema.But after delivery the story was different altogether.I had a huge flare right after the birth of my baby.i had to use Prednisolone steroid along with enemas to control it.It lasted for about 2 months and then i was fine until a worst flare hit me during Jan of 2012.The second one post delivery.It has been so bad that after 5 months of medicines i am still in a flare.The medicines used this time were Prednisolone(steroid) thrice,starting from 40mg and taper down.Still i was seeing blood in my stool once i started to introduce different food stuffs to my diet(i am on the same rice porridge and potatoes diet,and it sucks).I was also using enema for about a month but to no avail.Finally my doctor has added Imuran with the third time i started steroids.  It has been 2 months now.Firstly he gave me 100mg of Imuran and now it has been increased to 150mg.My Prenisolone course is over now.In addition i am also using 2 types of enemas,Predsol(hydrocortisone) and Pentasa(Asacol) daily.Despite all this i am still not in remission.I am depressed and not able to sleep at night.What is happening to me?Why aren’t the medicines working.I have been checking this site 3 -4 times a day reading all i possibly can.I am happy i joined this site and it gives me courage to see other peoples stories so similar to mine.So full of pain as if they were my own………I have not lost hope.I have started breathing exercises and i can feel they are helping with my stress and fatigue.I am thinking of trying the SCD diet but am still trying to get the book to read it first.i must get back my life and peace of mind.I must get over this disease!!I must be free!!
Where I’d Like to be in 1 Year:
In remission,pain free,confident,strong and independent.And yes, enjoying life like i should be!!
Colitis Medications I’ve Tried:
Hydrocortisone enemas and Prednisolone(steriods) have helped me get into remission in the past.

written by Ri

submitted in the Colitis Venting Area

Tags: nepal





11 Responses to “The Element of Freedom”

  1. RichaMay 28, 2012 at 11:24 pm #

    I am currently taking 6 tablets of Asacol along with other medicines which i mentioned in my story.I have extreme fatigue due to which normal daily activities have become impossible to do.I am currently in a very depressed state of mind.

    • emilieJune 9, 2012 at 9:48 am #

      Hi Richa,
      I can relate to your symptoms. I also have extreme fatigue and joint paint that comes with my UC. I have used Rowasa enemas with great success. I have been on the SCD with probiotics and I am feeling better. I hope you will go into remission soon and will be able to travel. I have had UC for over 30 years.
      Emilie

  2. BevMay 29, 2012 at 4:42 pm #

    Richa…Have you ever taken probiotics?

    The meds stopped working for me, as well, and I decided to try a good probiotic while I was still on the meds. It took at least two months to see results, but now, every single symptom is gone, except for a bit of bleeding!!! Yep, it’s true. To find the right probiotic, all you need to do is to go into the health store, tell them you have UC, and ask which probiotic you should take.

    In your case, it definitely sounds as if the antibiotics caused your UC. Get that good bacteria back in your gut…but give the probiotics time to work…please! It took at least two months for all of my symptoms to go away. Don’t stop taking them before you give them a chance to work. The meds the doctors prescribe for UC always seem to stop working eventually. You have to replenish your gut flora. Trust me. The doctors will never tell you that, and may even say that probiotics won’t work. Don’t listen!

    I’d love to hear you on this site again, in a few months, saying that you are in remission. Just try it. It can’t hurt, right?

    Cheers,
    Bev:) p.s. I would never advise anyone going off of their meds, but after a couple months on the prpbiotics, I did! No more meds for me…they don’t work anyways!

  3. RiJuly 29, 2012 at 10:30 am #

    So sad but there is only one brand of Probiotic available in Qatar!! Feel so lost………

  4. SHIVASeptember 16, 2012 at 2:19 am #

    I experienced stomach cramp and pain since past 6 months.I’m taking probiotic since 5 months but it’s not working.

  5. RiSeptember 16, 2012 at 2:44 pm #

    Where are you from Shiva?I tried to add you on facebook but am not sure about your ID.

    • SHIVASeptember 23, 2012 at 5:34 am #

      M from Nepal. Dnt know how u didn’t find me.Saps_xerox61@yahoo.com my id..Shiva chaudhari.frm Dang Nepal.Student of Pokhara university(BCA).Anyways hope that u will surely try again di.M also trying to find u.U can leave ur details in this page for my convinent….

  6. SHIVASeptember 23, 2012 at 5:41 am #

    di u can find me on merodang.com. Search shiva chaudhari in that link.

  7. SHIVASeptember 23, 2012 at 5:51 am #

    PLz di leave ur id i want ur help…

  8. RiJanuary 4, 2013 at 7:54 am #

    Hi Bev,

    Thanks so much for referring probiotic to me.I have been taking it regularly for the past 2 months and i can say it has done wonders for my UC.I am taking VSL#3.

    Thank you so much for your reply.May god bless you!!

  9. RiJanuary 4, 2013 at 7:56 am #

    Bev,

    Yes like you have asked in your post above i would like to inform you that i am in remission now.Happy and thankful and enjoying life…………….

    I went for a vacation to the US reunited with my family and had a blast!!!

Leave a Reply