My name is Riann. It’s pronounced Ryan, just like a boys. Just wanted to clarify straight out. I currently reside in sunny South Florida with my 2 young daughters. I have been in healthcare for 10 plus years and work for a medicaid provider process appeal requests from hospitals and doctors offices. I was diagnosed a little over a year ago but suffered with symptoms for about 3 years before that. I am truly grateful for my diagnosis. It may be strange to say but at least I know what it is and there are options for treatment.
My symptoms are not that bad right now. I have the joint swelling and chronic fatigue. Sometimes my brain gets a little foggy but I have not had any cramping for about 3 weeks. Like I said before stress is the biggest factor for me. Certain people can trigger stress and then I will flare and thats never good.
I am currently taking a probiotic, iron, vitamin C & D, and tramadol for the joint swelling. Recently started taking Lialda again. Typically if I have a flare I am prescribed a metro dose pack. Since my diagnosis my diet has changed completely. I drink smoothies a lot. I add Almased powder to increase the nutrient value. Ulcerative Colitis has completely changed my life. Having a chronic illness means you don’t know what tomorrow will bring. I struggle with my healthcare providers because they do not understand the amount of pain I am in everyday and how utterly exhausted I am after work. I am on the fence right now about working outside the house. I love working and enjoy what I do but my last flare was due to the fact we were short staffed and the work still needed to be done. I don’t care about the doctor checking out my bum. What I am unhappy with is how my body has changed… Losing the weight in the hospital, then gaining the prednisone weight and losing half my hair was rough… I am back to my normal weight but I lost all my strength. I am going to force myself to workout because I don’t know whose body this is. My family is one of the things that triggers a flare. I have a very intense Cuban family. Every time we have a family event or they come to town I get sick. I am most concerned for the future. I am not confident the doctors have my medication right. My other concern is for my kids. I already feel guilty that some days I am to tired to do much of anything. I am also concerned that they will end up suffering from UC as well. In the meantime, I will continue to be happy my health is mostly good and pray for a cure.
Prednisone..devils work… After taking that stuff I know what it means to be mental. It was so hard my the kids and my boyfriend.
Imuran–not sure how well it worked since I took it while I was on Prednisone. I broke out in a weird rash and had to stop.
written by Riann
submitted in the colitis venting area