Tag Archive | "Remicade"

Getting Flu Shots While on Remicade

Wednesday, September 8, 2010

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Getting Flu Shots While on Remicade

Just wondering about flu shots with Remicade…I am from the Northeast (prime flu area). I have NEVER had a flu shot in my life and have had only had the flu maybe once or twice. Everyone is telling me to get the flu shot (even the Doctor). I am hesitant bc #1 I’ve never had [...]

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Freaked Out When they Mentioned Surgery and Remicade

Sunday, August 29, 2010

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I was diagnosed with UC and was hospitalized for 3 weeks and out of work for 6 weeks. Tried many medications and like prednisone the best.

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Mom of 3 and Dealing with A Nasty Colitis Flare, It’s not Easy

Sunday, August 1, 2010

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My name is Michelle, I’m 35 years old and I have UC. I was diagnosed in Dec 2005, one month after my daughter was born. I currently have 3 children (via c-section) (4, 2, and 1)…so needless to say its a little busy around here. I have had flare ups before but always have been [...]

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I Urge Anyone Suffering with UC to Try This Diet

Tuesday, July 27, 2010

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I Urge Anyone Suffering with UC to Try This Diet

I was diagnosed with UC (pancolitis) last year after 2 years of being symptomatic and progressivly getting worse. I was very unaware about what this disease was and how it could affect your whole life. I am a 25 year old very socially active woman and this disease almost put me in a dehabilited state. [...]

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Awesome Colitis Patient SCD Story is Coming Soon

Monday, July 26, 2010

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Awesome Colitis Patient SCD Story is Coming Soon

Hey Everyone, good evening, hi everybody, my name is Adam, and we have a few videos like this, but I wanted to show you what I’m having for dinner tonight just in case you have what I got which is a disease called Ulcerative Colitis. I follow a diet, its real basic, nothing crazy, its [...]

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My Remicade Experience is Great for UC

Saturday, July 24, 2010

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I was diagnosed with Ulcerative Colitis January of 2006, and it completely changed my life. Luckily my doctor was able to diagnose me quickly, and get me on a treatment plan. Unfortunately is consisted of 20 oral pills a day and presented little relief of my symptoms… With the way insurance works these days, doctors [...]

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Trust Your Gut…Even When it Hurts

Sunday, July 18, 2010

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I was diagnosed late 2008 by an internist in a town close to home. My bleeding, frequency kept getting worse. He continuously kept switching my “preventative” meds. If I saw the slightest bit of improvement I would think hopefully “ok now I will get better”…only to get worse again. I quickly read a few books [...]

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Just Diagnosed with Colitis in South Dakota

Wednesday, July 14, 2010

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Just Diagnosed with Colitis in South Dakota

From South Dakota/recently diagnosed with UC May 2010. Received my second loading dose of Remicade and still on 10 mg of Prednisone. I am getting better/ more energy since starting Remicade and have not had diarrhea for 3 weeks! I can not tolerate any high fiber foods/raw vegies or fruits at this time. I am [...]

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Constant Pain, Blood and Depression with Ulcerative Colitis

Saturday, July 3, 2010

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Diagnosed in 1998. This is my 3rd hospital stay with a flare-up. they get worse each time. Solumedrol worked before, but is not doing the trick this time. Constant pain, blood, depression, you know the drill. Can’t take pain meds so i can be lucid enough to run to the toilet 40 times each day. [...]

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Share your Ulcerative Colitis Alternative Medicine Idea and Go to Heaven

Monday, June 14, 2010

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Hey Colitis People, I had an interesting office visit today with a Gastroenterologist office in San Mateo California.  I happened to be in the office for something work related and I asked the gastro doctors secretary some questions about the common protocol for their patients with IBD and specifically their colitis patients. She told me [...]

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I’ve Tried Every Colitis Drug, and now on SCD

Monday, May 31, 2010

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Below is a posting from an anonymous person who as you can see has taken many many medications for ulcerative colitis.  I thought it might be helpful for some other UC patients to see how it is not always easy to go from being diagnosed to finding a solution that works for you.  Thanks for [...]

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Ready for Remicade?

Thursday, April 29, 2010

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Ready for Remicade?

This Friday morning I am scheduled for my every 8 week Remicade treatment. Remicade aka infliximab is a immune modulator that is used to treat Crohn’s and Ulceratice colitis as well as many other types of auto-immune diseases. It is a humanized monoclonal antibody for TNF alpha made from mouse protein. TNF alpha is part [...]

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How Fast Does Remicade Work for Colitis

Wednesday, April 21, 2010

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How Fast Does Remicade Work for Colitis

Infliximab also known as Remicade is a drug that is used to fight autoimmune diseases, and many ulcerative colitis patients know it rather well. In the drugs early days in the late 1990′s the drug was approved by the FDA to treat Crohn’s disease patients and in 2005 Remicade was also approved to treat UC [...]

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3rd Remicade Infusion and Frustration

Wednesday, March 31, 2010

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I had my third Remicade infusion on Friday last week, 3/26. It actually wasn’t the coolest experience since I had a reaction within an hour of it starting. The Benadryl made me feel awful the first time I took it, so I had half the amount for my second infusion, and a ¼ the amount [...]

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Leukocytapheresis – Say what?

Saturday, March 20, 2010

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Leukocytapheresis – Say what?

I once whipped that out on a GI specialist that I had gone to see for a second opinion.  She responded : “You must know a lot about ulcerative colitis if you know about that”.  I said: “Yeah, I am geek.   I know about the worm study too.”  I had gone for a second opinion [...]

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My Story

Monday, March 15, 2010

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I was diagnosed with UC March of 2009, but my story begins much earlier than that! When I went to college in the fall of 2003, my food palate expanded to all sorts of new foods in the school’s cafeteria. I soon realized that I couldn’t eat certain foods because they caused me to have [...]

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My Drugs

Monday, March 8, 2010

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okay, today is March 8, 2010 and I have now added another drug to my list of medications I’ve taken, as well as another drug they’ll be giving me in the coming months. I thought I would type out a list of all my drugs to better give an idea of what some people might [...]

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Welcome to My World

Thursday, March 4, 2010

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hey everyone. my name is Ash and I have ulcerative colitis – or to be more specific, pancolitis – which means my entire large intestine is diseased. I’ve had every medication and experienced and tried almost everything known for the disease.  here’s my story. I was diagnosed back in February 2006.  some people have symptoms [...]

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My First Remicade Experience

Wednesday, March 3, 2010

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The Day Before I was really worried about what it would be like to get my first Remicade infusion. I have only been there to visit people or to go to the emergence room when I was little! I didn’t even know what I could do, eat or bring with me while I was there. [...]

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The Signs of My Ulcerative Colitis

Monday, January 11, 2010

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This is something that I don’t talk about very much, but it is very important.  In a nutshell, I probably waited 5 or 6 years and suffered with Ulcerative Colitis before I really did anything.  The biggest mistake of my life in-fact.  But its true. I can remember finally telling my wife that the reason [...]

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In Case You have not read the Book Yet, "Breaking the Vicious Cycle" is a must read for UC people. This book was written by the woman who discovered the SCD Diet.