Still Not Feeling Good 4 Months Later – Colitis to a Crohn’s Diagnosis

Introduction:

My Story:

Hey ! I have an update I’d like to share with you guys ..recently my diagnoses has been changed to Crohn’s disease from UC and i still am in so much pain. Now I am taking 30mg of prednisone a day..40mg of prilosec for heartburn (the heart burn is still awful) and I am getting Remicade infusions every 5 weeks and seem to still not be feeling better.  Luckily the blood has stopped in my stool but I still have a lot of symptoms. My doctor so far has been excellent! I just wish i knew why i still wasn’t feeling better.  For me this disease came on so sudden- I was totally fine -working and getting ready to go back to school until all of a sudden I was really sick.At first we thought I just had a stomach bug ,but then all of my symptoms starting coming with the very bloody stool and I could not leave my house because I was so sick.  After 2 weeks of that I was admitted into the hospital for 2 weeks we have finally come to a diagnosis. throughout this whole thing my family has been so supportive and helpful.  I don’t know how I would have done it without them.  Has anyone had any similar issues or any advice? could really use it . It really makes me nervous at the fact that it has been 4 months and I am still in a lot of pain.Does anyone else feel the same way?Has Remicade been working well for anyone else ? Any tricks that have made you feel better? In a few weeks I am actually doing a walk for the Crohns and Colitis Foundation to raise money to find a cure-let’s hope we find one soon! if anyone would like to donate please let me know!

written by Meagan

Meagan

Diagnosed in early February of 2012 with ulcerative colitis at the age of 19 years old.