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Starting the SCD Diet on Meds!

Hello Adam and UC’ers!

I’m really happy I found this website

and I’m hoping to get some SCD tips from the group.

My name is Steph and I’m a 27-year old teacher in Boston. I was diagnosed with UC in 2009 and I’ve tried Lialda and 6MP unsuccessfully. Acupuncture didn’t help me much, but I’m trying to explore non-Western alternatives. I’m currently on Lialda, 6MP, and prednisone and the GI doctor has recommended Remicade as a next step. I learned about the Specific Carbohydrate Diet (SCD) this summer and I would like to try SCD before trying Remicade. While the change of lifestyle seems intense, I think I’m up for the challenge. Good health is everything, right?

Has anyone started SCD while on medication?

I was doing some research about getting started with SCD and I’m frustrated to learn that there are SCD illegal starch ingredients in my current UC medications (Lialda, 6MP, and prednisone). I am planning to order vitamins from Freedavitamins, but I don’t know what to do about my current colitis medications. The hope is that I can taper off of the medications, but I don’t think the diet can be effective if I am consuming some illegal ingredients. Please direct me to resources about starting SCD on medication and let me know what you have tried.

Also, any tips for starting the diet are welcome. I’m 27 and live with roommates, but fortunately my parents live close by and are willing to help with food preparation. I’m also vegetarian, but I’m thinking that it may be wise for me to add some meat to my diet since no soy products are allowed on SCD. Has anyone gone through SCD as a vegetarian? Or any advice on introducing meat back into the diet?

Thanks in advance,

Stephanie

 

(Submitted by Steph in the Colitis Venting Area )

Details regarding the diet are on the SCD DIET PAGE




8 Responses to Starting the SCD Diet on Meds!

  1. Adam
    Adam November 23, 2011 at 11:33 am #

    Hey Stephanie,

    Thanks for posting your story!
    And thanks for the shout out at the beginning! it’s great to hear what’s happening with you.

    I want to give you some feedback that’s firsthand based off my experience with starting the SCD diet.
    If you haven’t read already, I started the diet back in August 2009, and at the time I started it, I was infact taking a low dose of prednisone (either 15 or 20 mg/day).

    What I did, was I tapered very slowly off the medications, and after another 2 1/2 months I was off the prednisone completley and fully on the diet without medications. That seemed to work very good for me.

    I did run into a flare up about a year and a half later, and I decided to get on a small dose of prednisone once again from it, the actual story about that is listed here: http://www.ihaveuc.com/update-my-colitis-symptoms-for-2011/

    I was never taking Asacol, Canasa, Lialda or any other medications other than Prednisone since I’ve been SCD, so I don’t have any first hand feedback about how those medications can help/harm anyone in their goal to be SCD compliant. From what some other people have written to me, it is very possible to make the transition though while taking those medications too.

    Peter NZ who follows the site and posts stories regularly is a vegetarian, and although he doesn’t follow SCD 100%, he seems to be doing pretty darn good with eating that way.

    As for me, I’d never make it as a vegetarian, I eat meat with every meal, other than when I crank out a smoothie.

    As for tips on starting the diet, there’s all sorts of infomation about that on the internet. On the SCD page of this website, there are two different guides that I think are great ways to get started, also, on the Colitis Diet / SCD diet page, there is a newsletter you can join if you haven’t already which is targeted specifically to treating UC with diet.

    I’m way excited to hear how things go down for you, and I think you should be alright. If you can transition back in some meats, then we could share all kinds of recipe ideas together, but if you are pretty sure you’re not going to be adding in meats, then we could still share stuff, especially if you can get creative with some nice smoothie ideas too.

    In case you’re wondering, I’ve been on prednisone for a total of 3 months out of the past 27 months, and otherwise medication free, so I’m pretty pleased with how the SCD has treated me.

    Best of luck, and stay in touch,
    Adam

  2. Garry November 23, 2011 at 5:34 pm #

    Good luck with the SCD, Steph. I too tried acupuncture and had no success. If you are exploring non-Western therapies, I strongly recommend applied kinesiology. I have had great success since starting ak. Of course, the problem with this disease is that there are so many factors that can contribute to an outcome that I can’t say it was AK alone that ended a 30 month flare (which remicade, prednisone and 6mp could not control). Eating right and eliminating negative stressors no doubt also contributed. But I continue to see my AK doc regularly and do believe that she has helped control my UC symptoms over the last two years.
    Best to you.
    G

  3. The Crohn November 23, 2011 at 8:54 pm #

    Hey Steph- I’m in the same exact boat you and Adam were. I’m tapering off the prednisone as we speak and documenting my SCD experience! I started SCD on 40 mgs of preds and am currently at 12.5 mgs right now. I feel completely symptom free of Crohn’s right now, and am only dealing with minor side effects of the predz.

    My website documents, in detail, my approach to starting SCD (in my case, with prednisone) tapering off, and overall progress.

    Website: http://www.thescdexperiment.com
    Results pages: http://www.thescdexperiment.com/results

    In the results page, you can go into week-by-week specifics as to what foods I ate, my activity level, and how I was feeling that week.

    For the past 2 weeks, I’ve had completely solid stools. And it’s been years since I’ve had solid stools. During my first major flare (pre-SCD) prednisone was my first treatment option- and I was on 60mgs for 4 months and it didn’t do anything. Was still major poopin big D 5-10x a day. Now I’m having solid 4s on the Bristol scale- the healthiest poops you can possibly have. And I haven’t had one stomach cramp in weeks.

    In short, whatever I’m doing now is working- at least, at this very point and time in my life. Please let me know if you have questions with SCD and I would be sooo happy to help (my email is jothecrohn@gmail.com). Best of luck to you, kid.

  4. Riddel November 26, 2011 at 9:01 pm #

    I personally continue to take my meds (lialda) while on the SCD.

  5. Steph2 November 27, 2011 at 6:10 pm #

    Thanks for all the support everyone! I am on day 3 of SCD and it’s going okay so far! One of the weirdest adjustments is eating meat again after being veggie for 6 years, but I’m not going to lie, that chicken soup is comfort food from my childhood.

    That’s great that so many of you have experienced relief from SCD and have been able to wean off the meds. I’ve decided to keep taking my meds even though there are starches in them. There’s a point where you can’t make yourself crazy and it sounds like others have gone through it successfully, so that’s great.

    I’d love to share recipes down the road! I’m a big smoothie fan and I am looking forward to the day when I can blend up some fruits and scd yogurt! Amazing how expansive the entire SCD list seems when I’m only on phase 1. I guess it’s all relative!

    By the way, do you guys use a particular type of salt? I wasn’t sure if there was a preferred type. Thanks!!
    Steph

    • Adam
      Adam November 27, 2011 at 7:29 pm #

      Hey Congrats Steph on starting things off, and I hope you see some big improvements this week. it’s gotta be real weird hitting up meats again after none for so long.

      Hey about the salts, for me personally, I use regular table salts most of the time, and sometimes on meats, I use the more coarse Kosher Salt too. I don’t think there is a preferred type though.

      Take care, and keep us posted on how things go this week,

      all the best to you and your family,
      Adam

  6. Josh October 19, 2012 at 7:35 pm #

    Hey guys,

    I’m in the same boat, I got diagnosed with Chron’s probably about 3 weeks ago, I’ve been on the scd intro diet, (deviated a little with fruits and more advanced food – all scd legal) but have still had chronic diareah (some days not so bad) some days, like recently, just terrible with nothing but blood. So anyway, i am starting my 40g pred over 8 weeks, and hopefully gonna taper off without symptoms in combination with the diet, if anyone could let me know if they’ve done similar that’d be great.

    • joanna October 20, 2012 at 2:28 pm #

      hey josh. what have you been eating? i’m the same as you… still having diarrhea. i just need to stop fruits all together. i’m gonna try it next week and see how i feel. i am not on prednisone at the moment but i just stopped 6mp recently (like a week or two ago). it wasn’t helping my symptoms at all. are you on anything any maintenance med now or are you just starting prednisone?

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