Spent All Christmas in the Hospital and 5 Times Since

Introduction:

I’m 27 with 4 kids and found out I had ulcerative colitis Xmas eve of 2012, after months of pain, toilet trips, blood and mucus. I ended up spending all of Christmas in the hospital and I’ve been in 5 more times since then with flare ups. I need advise what to do because I have no life at the mo at all!!!!

Some more about me:

I love going out with my kids when I can and I love going bingo with my sister. I love gym but can’t go now and love swimming.

Current Symptoms:

Currently I’m having a flare, sore bum, tons of blood and mucus, pain is unreal and loads of trips to the toilet.

Spent All Christmas in the Hospital and 5 Times Since

Since Xmas I been in hospital 5 times cos of flares and I have completely had enough already. I no people on here have had it years but I just can’t cope with it all ready. I’m currently in bed and have to have help with my kids. What can I do to help my condition. IBD and colitis is ruining my life. Been on steroids so many times they just don’t work. I tried diets and they don’t work either. Any advise I would be very very grateful. My family have to help out with my children all time and partner and friends have had to take loads of time off work. I can’t eat what I like cos I end up being on the toilet nearly straight after. My mum has to push me in a wheelchair around the supermarket some time depending on the pain cos sometime I can be fine one minute and then be in complete pain and can’t stand up properly. I walked to school and on the way back I poo’ed myself and I had to put my coat around my waist s o people couldn’t see and I was pushing the pushchair with my younger daughter and just pushing her made the pain worse. My children have suffered. Loads of times they have had accidents cos I been on the toilets loads and ages.

It all started last year around about November when I was just having blood in my poo but it down to piles. Then I started having Diarrhea and I thought I had a bug and then the pain and the accidents were happening loads more. Then I moved house and the stress of that made it even worse. Cos I moved house I had to register to a new doctors and it took 2 weeks for them to register me and my kids, so when I did see the doctor on the 21st of December I was sent into hospital. I was told by a gi doctor i had aggressive colitis on Xmas eve and was told I couldn’t go home or Xmas. I missed my kids opening there presents and Xmas dinner. I was in loads of pain and very upset cos I wasn’t with my kids. My family came into see me but it wasn’t the same. I discharged myself on New Year’s Eve but was admitted again in January and February and march.

Medications:

Inflammation tablets don’t work, steroids ain’t working now, stuff I put up my bum don’t help. Injections in my stomach don’t work either.

written by Heather

submitted in the colitis venting area