I’m 44 years old and the mother of three with a husband. When I first got UC, it wasn’t as bad as it is now. 2009 I was diagnosed with Ulcerative Colitis and before that I had it for a year. It was pretty horrible until I got on prednisone in 2009 and as soon as I took the prednisone I was better. After I stopped taking prednisone, I took Asacol for a couple of months, but my joints hurt and I felt bad taking drugs wondering what the long-term side-affects would be to my body. After three months I stopped taking any kind of medication. In October 2011 my colitis became so bad I had to get hospitalized for five days. It was very very bad. It was far worse than the the worst it was in 2009.
My symptoms change all the time. At present, my stomach is bloated and sore. I was supposed to work out at Zumba tonight, but I can’t, because the pain is too great. Today I have urgency and actually nothing happens when I go to the washroom.
If I’m sometimes almost normal, should I have my colon removed? I am planning on it, but I feel stupid for doing it. I am also VERY scared to do it. I saw the video for the surgery on youtube and it is gross. It makes me think of torture and it’s horrifying, but I am not going to take any more drugs. None. Last October I had to be hospitalized for five days and I have never recovered fully. In 2009 I was diagnosed with UC after suffering for a year with no one knowing what was wrong with me. I felt crazy for bugging the doctor, but I knew it wasn’t hemorrhoids or an infection, I knew it was something different. I just didn’t know what. I consulted with a surgeon and I don’t trust him to operate on me, so I scheduled an appointment at Mayo Clinic and I am supposed to go there on the 29th of May for 3 – 5 days of getting checked out and they will decide if I should have surgery. My gastrointestinal doctor said he agreed that surgery would be good, but the doctor I was referred to I feel very uncomfortable with. I quit my job as I was on the toilet at least 6 hours out of an 8 hour shift. I wasn’t fired, but I didn’t think it was fair to my employer. I have applied to a part-time job with flexibility today actually. I’ll have to take a week off to go to Mayo and another week at least to recover from the surgery if they agree to do it. I am currently taking supplements which help control UC in a way. Sometimes it doesn’t work very well. I also have joint aches with the drugs so bad it is difficult to get up in the mornings. Any UC drugs I’ve tried I’ve had very sore joints. I feel so much better without the drugs, even though the pain of the UC is pretty bad sometimes, it is preferable to the drugs.
Where I’d Like to Be in 1 Year: In a year I’d like to be healthy.