Ulcerative Colitis Tips


The FREE iHaveUC eBook "Ulcerative Colitis Tips" is made available to all members of the 15,000 person newsletter group INSTANTLY. It is several pages of tips gathered from other people living with Ulcerative Colitis, and has ideas which can be put into action immediately. You will need to enter your email, and confirm the email address afterwards.

SCD Success

Intro:

My name is Marisa, I live in NYC and have had UC for 8 years. I’ve tried Asacol, Colosol, Cort Enemas, Prednisone and am now on 75mg of 6MP per day. Usually have 1 flare a year that lasts 2-4 months.
My Colitis Experience:
Hi everyone! I was inspired to write because for the first time since being diagnosed with UC, I found something drug free that seems to be working. Believe me, this is incredibly exciting. For the past 5 years, I have had flares that start in the Spring, take 2-4 months to clear up, and usually land me in the hospital. I have come to just expect this every year, so about 2 weeks before Christmas when I could tell that a flare was coming on, I freaked out. I just wasn’t ready to deal with another flare and the miserable months ahead. I also wasn’t ready for Prednisone and all of the crappy side effects that come along with it. So, I came to Adam’s site desperate to find stories of anything that had worked for others. I had always been hesitant to try the SCD (Specific Carbohydrate Diet) diet because at a glance, it seems pretty limiting, and I REALLY love bread. But, like I said, I was desperate, and I had read so many stories of success with the diet that I quit my regular diet cold turkey, and jumped right into the SCD Intro that night. I found the guide to the intro on the SCD Lifestyle website that two guys named Steve & Jordan maintain. I would suggest you check it out because it made planning out the first several days of the diet simple to follow.The first couple days were a little tough, but nothing to complain about. And after a week on the diet I had the most satisfyingly solid crap in years. We’re all friends here, so I can say that, right?After a few days of feeling really well, I got a little overconfident and cheated on the diet. It was Christmas and there were so many amazing treats around my parent’s house! I did notice that I wasn’t feeling as great as I had been though, so now that I am back home in NY and can control what foods are in my house, I have been back on the diet and am being really strict about it. (p.s. a great way to make friends at work is to bring in all the junk food from your cupboards that you can’t eat anymore :) I’ve found a great recipe for banana bread, I’ve enjoyed some delicious jalapeno cheddar burgers, I’ve made some of Adam’s delicious Coco Colitis smoothies and I don’t at all feel deprived. Best of all, my stomach has been feeling great.

I’m still a slightly skeptical at this point because it’s so early on and I’ve never reversed a flare before. However, based on how I have felt so far, I can’t see any reason to stop doing SCD; it’s an incredibly healthy lifestyle. Hopefully the good stories, and craps, will continue!

Ulcerative Colitis Medications:
I tried Asacol and Colosol with no success. Prednisone got me out of my first flare that had been going for over a year within days, but it has taken much higher doses and a lot longer to take effect every flare since. I started 6MP about 2 years ago and it seems to keep me healthy for most of the year until Spring rolls around and a flare starts up again.
written by Marisa
submitted in the Colitis Venting Area

***To learn more about SCD

Visit the diet page hereSCD Diet Page




9 Responses to SCD Success

  1. The Bird January 7, 2012 at 6:51 am #

    Marisa,

    I’m really happy to hear that you’ve found success with SCD, keep up the good work. Once you find something that works, hold on to it for dear life :) Btw, it wasn’t clear from your story but are you still on 6MP at the moment?

    Enjoy your solid pipes! It’s the best gift one can get around the holidays…. hahaha.

    • Marisa January 12, 2012 at 11:08 am #

      @The Bird

      Yes, I am still on the 6MP. I don’t have any plans to go off of it any time soon. It’s the only thing that has kept me out of a constant flare so far, so I’d like to talk to my doctor first and let him know what/how I’ve been doing with SCD and see what he thinks.

  2. George in Napa January 8, 2012 at 8:13 am #

    Hi Marisa,
    You mentioned that you have been on 6MP for about 2 years. Do you have any bad side effects from it?
    I will be off of prednisone very soon and when I quit the pred I usually start having a flare in a month or two. If this happens again, my doctor wants me to start 6MP. I have been very leery to do so and so far I have told my doc no.
    The SCD diet does help some with my flares but not quite enough.

    George in Napa

    • Marisa January 12, 2012 at 11:19 am #

      Hi George,

      I have not had any side effects from the 6MP, but I get blood tests done regularly because there can be serious side effects with your liver function and toxicity. So if you do go on it, keep that in mind. You doctor should probably order a blood test before he even puts you on it just to make sure everything looks good. Another thing you might want to consider is that it takes about 4-8 weeks for the 6MP to kick in. If your flares are anything like mine, they progress rapidly and leave me almost unable to leave the house, so I wouldn’t want to wait too long to start the 6MP after the first signs.

      It has really worked well for me, and will hopefully continue to work well without any long-term effects. If you decide to try it, I hope it works well for you too!

      Marisa

      • rico February 3, 2012 at 3:38 pm #

        hey marisa,how long were you on the scd diet before seeing any changes?ive been flaring for a year,been on all the meds ,now on remicade,going for my third infusion,and about to start 6mp,any good advise,thanks.rico

  3. Tiernee
    Tiernee January 12, 2012 at 10:52 pm #

    Awesome! Thanks for sharing Marisa. I’m just so close to trying the SCD thing and hearing your success is very motivational. Hope everything continues to go well!!

  4. KK-SCDer October 1, 2012 at 1:05 pm #

    Marisa,

    I’m curious to know how you are feeling now that I have been on SCD for like 10 months now. Have you continued to see improvement? Have you stayed with SCD? I’ve been on it for almost 5 months, so I’m curious what to expect.

  5. srzm October 4, 2012 at 9:49 am #

    Hi All,
    My 15 year old son was diagnosed almost 6 weeks ago. He is almost done with a course of prednisone, currently being tapered and on 5mg until Sunday when he is done. I started him on the SCD diet as soon as he was diagnosed. He has never had diarrhea only stomach aches and weight loss. I was supposed to start him on Asacol 6 weeks ago but did not. Yesterday a second opinion doc gave me a prescription for Pentasa. I am confused as what I should do. He has gained back over 20 pounds in 5 weeks, works out every day and has not had a single stomach ache since 3 days into pred and the diet. Any help or advice from anyone would be greatly appreciated!

    • joanna October 4, 2012 at 1:23 pm #

      if your son is feeling better from SCD, i wouldn’t go on meds. that’s just my opinion. don’t want to mess up a good thing.

Leave a Reply