What is happening my UC family? It has been sometime I almost feel like I need to reintroduce myself to the family.
Ok! I will make it quick…My name is Kyle. I am a teacher and have been diagnosed with Crohn’s disease. That’s right everyone, after my last flare I have moved from the wonderful world of UC into the In-Laws side of IBD, CROHN’S. I hope we can still all hang out at the family reunion and I won’t be outcasted like a Leper! It was all because of a fistula that formed during my last flare, GI said anytime they see something happen outside of the Colon it’s considered Crohns disease. Like I said friends this was not by choice but as fate would have it I am not backing the Crohnies!
So…. What has been going on with me?
I took on a very serious flare this Fall once again coupled with a C.Diff infection (2nd time), developed an abyss and had to go to the removal clinic : ) They found I also had developed a fistula so I had to get a seton placement. I just got that removed 2 weeks ago and am praying that the fistula is healed and I won’t have to worry about a seton going anywhere near my booty for a long time!
I started the SCD about 2 1/2 months ago and I feel as though I have experienced great success with the diet as everything digestively seems to be back in it’s working order. Translation I am very normal in my bathroom routines; I am currently working through the phase list from the SCDlifestyle website and have just begun phase 3. That’s starting from intro on up, I still not done anything raw, everything is well cooked!
My question is I am still experiencing tightness in my gut. I call them the Crohn’s crampies It’s not like I am in pain but it’s definitely enough where I know it’s there and it usually wakes me up in the morning and is with me until I go to bed. It does wear on me and by the end of the day I am pretty worn from dealing with it. I am just curious if anyone has any wisdom they can give me in dealing with this constant grip on my gut?
Support would be great from anyone who has dealt with this before. I am committed to the SCD and know there is hope with this way of living but I am just needing some comfort in knowing that I am headed in the right direction and people have not only experienced this but have overcome. Look forward to hearing you share your support. Thank you all!