Ulcerative Colitis Tips


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Scared and Suffering

Introduction:

I was diagnosed with Ulcerative Colitis in December 2010 after suffering for almost a year with symptoms.

My Story:

In November of 2009 I was suffering from being super constipated. I chalked it up to being on Weight Watchers and eating too many fake fiber bars. I discontinued WW at that point and started on a really stressful project. In January of 2010, I went to the ER after 3 days of diarrhea. I was immediately taken to the back and started on an IV drip due to dehydration.

The doctor came in, stuck his finger up my butt and said, “You have hemorrhoids, that’s where the blood is coming from”.

So I asked what was causing the diarrhea. He said it must have been a stomach bug. He prescribed me Dicyclomine and told me to follow up with my PCP. For 3 weeks, I battled with the same symptoms. My PCP just wrote it off as IBS and told me to continue with the Dicyclomine. To fast forward, I dealt with the symptoms and taking a pill that wasn’t doing anything until around October of 2010. At that time, I demanded to be referred to a GI. I was fatigued. Sleeping from 6pm to 7am and barely making it through the day. It was effecting my relationship, my job, my life.

The GI was infuriated that it had taken so long to be sent to him. And I was immediately scheduled for a colonoscopy in December. Results: from end to end inflammation. The doctor started me on Rowasa and Canasa, with a follow-up in 3 weeks. No change. He started me on a 6-week course of Prednisone. Felt better until I got down to about 15 mg/day. Was off the steroids for about a month, with mild symptoms. Another course. Symptoms returned in last 2 weeks of course. At this point I was just dealing. Started juicing and drinking green smoothies. Symptoms got worse. Another course.

And that’s where I am today. Last week of steroids, colitis symptoms returned a week and a half ago. Doctor wants me to go on 6MP and I’m scared. My GI doesn’t think that diet has any effect with symptoms and I’m really wanting to shop around for another GI. I guess I’m just concerned that starting another medicine isn’t going to help. I just don’t see how pumping someone full of drugs until you find one that makes them feel better is okay.

Submitted by “Living in Philly” in the Colitis Venting Area

Related Stories from Other UC’ers:

Scared that Ulcerative Colitis Symptoms Will Return

Scared to Take Antibiotics

Feeling Hopeless and Scared to Try Immune Suppressants To Treat My Colitis

I Urge Anyone Suffering From Ulcerative Colitis To Try This Diet

Mentally and Physically Tired of Ulcerative Colitis

 




dicyclomine, scared

5 Responses to Scared and Suffering

  1. kodo kazi September 9, 2011 at 6:16 pm #

    it has EVERYTHING to do with diet!!!!!!

    • Nanda September 10, 2011 at 2:05 am #

      I agree, it has a lot to do with diet, maybe you should look for another GI, You have to alter your diet depending on whether you have diarrhoea or constipation. I myself at the moment am flaring with constipation and i just don;t touch things like cake and white breads and heavy foods, i stick to foods full of fibre and i drink ALOT of water in the form of herbal teas which helps with the flow of the bowel movements!

  2. Trish September 10, 2011 at 4:39 am #

    NB: if you have constipation, Nanda, try magnesium – lots of it. I wish someone had told me about this years ago, rather than my taking stool softeners and endless prunes! A complementary practitioner recommended 600mg daily and then backtrack until the D stops – this is far more than you’re ‘supposed’ to need, but he said that foods are nowadays very depleted in magnesium and virtually everybody needs a supplement. I find I need at least 400mg a day and I weigh 135lbs. :) T

    • Nanda September 12, 2011 at 9:47 am #

      Thanks Trish, i’ll look into that, does it come in tablet form?

  3. William September 10, 2011 at 5:43 pm #

    I would absolutely try diet changes and get a new GI before going on 6MP. Depending on your insurance and ability to travel, you might want to think about going somewhere like Johns Hopkins which would not be that far from you. Or, find someone local that specializes in UC that is more open minded. 6MP is a serious drug and your instinct to be concerned is correct.

    What is your typical diet?

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