Ulcerative Colitis Tips


One of the 15,000 ulcerative colitis folks using the site adds:
"Like many UCers I have spent many hours trawling the internet googling the condition and came across your website a few years ago. I read your ebook and really liked your honesty and humour. As everyone says your positivity is so encouraging and now this is my go to website when I'm thinking about UC. Thankfully my symptoms are pretty much under control at the moment but just wanted to say thanks." Kate

Salofalk Suppositories at Night for Colitis

Hello I was diagnosed in December 2009 with Ulcerative Colitis. Have been on prednisone and Salofalk since December, at one pred every other day but having a flare up for the last month. See my GI this week, not sure where we will go from there.   Also taking salofalk suppositories at night, but not sure if those are helping. Just reading the website finding lots of info and support which is what I need right now.

(This was a stories that a fellow UC patient shared on the site today, since there has not been any mention of Salofalk suppositories so far, I thought it would be good to include as maybe some others are also taking them right now.  I-Adam, took Rowasa enemas for a few weeks and had an awfully hard time getting into the motion of taking them.  If you are not used to that type of application, and most people surely are not, it can be a bit difficult to get used to.  But, after a few go rounds, I found some way to get a bit more used to it and was actually able to keep the medicine inside nearly throughout the night.  If anyone has some good or bad news with regards to taking overnight suppositories, or if anyone has some interesting experiences with enemas, please feel free to share them or write some comments down here.  This is a topic that many people are not really comfortable speaking about as it involved putting something in your doodie hole, but it is definitely part of the medical treatment for ulcerative colitis none the less.  And, for some patients it is obviously very effective )

Thanks for Sharing Kim!




gi, rowasa, salofalk, suppositories, UC

15 Responses to Salofalk Suppositories at Night for Colitis

  1. anon June 11, 2010 at 9:08 pm #

    temporary to get off the prednisone
    decade later still on them
    after a sore day look forward to the instant soothing relief
    by morning usually feel much better (even if lost quite a bit of blood)

  2. Vicki Thomas June 12, 2010 at 4:13 am #

    I’ve taken the Salofalk suppositories and the enema. My doctor took me off the suppositories because he said these only work if your colitis is “low down” in your colon. I used to take the Salofalk enema everyday (even when I wasn’t sick) but I did stop taking it – didn’t see the point in taking medicine while not sick. I’m in a flare again and I can’t keep the enema in… So my doctor switched me to aural Salofalk – I’m taking a lot – 8,0000 mg a day. The Salofalk suppositories and enemas were my first experience with such types of medicine – not the easiest to take but once you get the “technique” down they are quick and easy to apply/insert. I’m new to ulcerative colitis – diagnosed one year ago – I’m considering the SCD Diet though I’m an elite cyclist (on the Canadian team) and I’m concerned about how the diet will work with fueling me for cycling. I’d like to hear from other athletes about this.

    • Adam
      Adam June 12, 2010 at 8:11 am #

      Hey Vicki,
      Thanks for posting your comments. I myself was not the one who took the Salofalk, but I couldn’t help but want to respond to your comment. Unfortunately, I find myself in my first flare since last august. After being diagnosed in Oct. 2008, I was extremely inflamed/severe and tried all types of medications for my colitis, but nothing seemed to work. Not until August 2009 did I try the SCD diet. I was introduced to the diet from a family friend who was 23 years old and a 10 year colitis vetran at the time. She was medication free for several years and symptom free as well all from the diet in her opinion. Also, as you might be interested to know, she is a marathon runner and is always training for things like that, so quite active.(I looked at your website, so not sure if she is on your level of extreme sports, but she is not a couch potato…)
      Congrats on your bike ride finish in Tabor. That was starting city of a 28 day long bike ride for me back in 2007. Did a CZ/Slovak bike tour that all started there.

  3. Heather June 16, 2011 at 4:35 pm #

    I was prescribed Canasa but since I get my drugs online from Canada (which saves me about $420 every time I refill) they send me Salofalk. I wasn’t too happy when I first found out HOW I had to use them, but they work reasonably well so I can’t complain too much. :)

    • Bruce September 26, 2011 at 7:20 am #

      I have had UC for the past 40 years – it started while i was at high school and went into different stages – in the 90’s i received an advice from an doctor while travelling in India to stop all dairy like milk, cream, ice cream etc… at that time Salofalk was also introduced to the market and i started using that . i realized I was effectively intolerant to lactose only when i avoided all lactose produce by seeing an improvement . By avoiding dairy products all together i was ablle to be normal again . So try doing this for some time, the important thing is to be consistent. Salofalk helped too but the dairy lactose avoidance helped most – hope this helps you too

    • scott October 3, 2011 at 9:18 am #

      i have been buying salofalk and asacol for years at very high costs. how can I reduce this by buying online? would appreciate your advice;

      sincerely

      scott

    • Holly August 19, 2013 at 9:42 am #

      I need to order meds from Canada to keep my cost down too. I’m super anxious about doing this. Which pharmacy do you order from??? I’d greatly appreciate the help!! Thanks!!

  4. Hopskotch October 6, 2011 at 7:30 pm #

    I’ve used Canasa suppositories, Rowasa enemas, and now I’m starting on Hydrocortisone enemas. I do quite well with the suppositories – in the old days when my UC was only in the rectum, I could end a flare with just those (plus Asacol as always). Now that it’s spread, I still find they work well, cause at least for me, the rectum seems to be the source of most of the urgency problems. So even though I have to still somehow treat the rest of the flare, life gets easier once the rectum is under control.

    I don’t do well with the Rowasa enemas – they seem to aggravate some of my symptoms. Also, they are hard to retain during a flare. Am 2 days into the hydrocort enemas – so far so good… seem a little easier to retain, as I think there’s less fluid in them than in Rowasa.

  5. Duane June 17, 2012 at 10:00 am #

    Hi there everyone

    I have had UC since I was 12. Most of those years it was severe episodes followed by remission for years. Recently however it has changed its character. It is now mild but chronic. The chronic is the urgency. Every day. Turns out my GI says I have a stricture and thus the left side of the lower colon has scar tissue and thus doesn’t have flexibility thus the urgency. It comes down and has to come out. The problem is recently I had a stomach hemorage in the middle of the night and almost died from internal bleeding. The DR thinks it was because of the Asacol (800 mg X2 X3 times a day). It may have burned a hole through my stomach lining and thus the bursting of a blood vessel. So that is under control but haven’t taken my Asacol obviously for a month and the symptoms have now changed from small, narrow frequent stools to much more freguent, loose and sometimes bloody stools. I can’t take anything of the 5-ASA variety orally for quite some time if ever. What do you think of the Salofalk suppositories?
    Does anyone else have a stricture? (narrow hardening of the colon wall) Is it permanent? Do I just have to live with this now?

  6. parti June 21, 2012 at 11:35 pm #

    does anyone experience alot of hair loss on the above mentioned asacol and salofalk

    • James vancouver May 9, 2013 at 7:56 pm #

      Re: hair loss
      I am 47 and have had IBD since I was 19 y/o. There as been nothing new in a cure as we all know- only meds to control flare ups and hopefully have remission periods. I have had hair loss on any of the meds I take for IBD. Including salofalk , entocort, hydrocortisone …
      I was just surfing the net now to figure out how I can reduce the hair loss I am experiencing- and came across this site. I am on salofalk suppositorys (2000 mg/day) and I am getting pimples on my scalp causing more air loss than normal. Anyone else experience this ?

      As an aside – I have read that the highest age group to get the disease of colitis ( and all similar diseases) is late teens to 20s -can be caused by the drug ACCUTANE. ACCUTANE is a last resort drug for severe acne. A year after using it, I got IBD. There have been several articles written about this. I am grabbing at straws, but it seems to be a strong correlation for me.

  7. Claire August 2, 2013 at 1:51 pm #

    I’m 17, only got diagnosed with uc this year in May so I’m very new to all the new types of medications i have to consider being on. I’ve got left sided colitis to be more percific, I’m on 2g of pentasa granules twice a day but my doctor seems quite sure i’ll end up having to go onto steroids. The Pentasa put me into remission since May but only recently I’d started seeing blood again so I told my nurse and she’s starting me on these suppositories, just wanna know for a bit of peace of mind or what not how easy/hard are they to administer? I’m not so much bothered about putting it in, but how hard or easy are they to hold it in? and do they start dissolving as soon as its in?

  8. Vicky January 7, 2014 at 8:13 am #

    Just browsing this thread as I was recently diagnosed with ulcerative proctitis and am taking Salofalk. I did take accutane in my teens for acne.

  9. Steve April 13, 2014 at 5:45 am #

    Have had UC since I was about 26, am now 41. I take mostly Imuran tablets 4 per day, have done so for quite a few years, have taking Salofalk enemas in the past, just took my first one in over 18 months as it has just flared up, not happy. Is was it I guess?

  10. jeanette fudge April 21, 2014 at 5:57 pm #

    could tell salofalk 500 mg a steroids.. and what coin of food do I eat or what out for thank you…………..

Leave a Reply