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Remission with Metamucil

(here's a recent picture of Eddy)

(here’s a recent picture of Eddy)

Intro:

I’m originally from Brazil but I’ve been living in Florida for almost 11 years.

My colitis story started 2 years ago when after a terrible fight with my girlfriend I felt that the disease decided to take over my body. The symptoms began mild but suddenly aggravated considerably.

I really don’t think that the fight with my girlfriend was the cause, probably the disease was with me waiting silently and once the trigger was pulled my life changed completely.

I was having around ten bowel movements a day and eventually blood was seen as well. Probably like everybody else, I started with the Mesalamine family, it worked for a couple days but suddenly I started to have diarrhea and blood all over again. I tried so many doctors and they all gave me the same option: infusion (Remicade or Humira). I ended up in a hospital for a week after that…

Some more details:

I even had a terrible experience with a doctor who told me that the only option was surgery because this disease is a “pre-cancer” and something more hardcore should be done! I left his office literally crying thinking that I would die very soon, I’m sorry for those who have decided to solve the problem through surgery and probably it was a great option for some, but the way he spoke to me about the matter, It was unacceptable…what a butcher!!!

According to the side effects that so many people have I never wanted to give up and take Remicade, so I decided to try some alternative medicines, from teas, probiotics, weed, diet, olive oil and even a crazy chiropractic who charged hundreds of dollars for some cracks on people’s back, whatever you can possibly imagine I think I tried, none of them worked as expected. I haven’t mentioned about some accidents yet, so embarrassing and traumatizing, I had to leave the job site so many times, running to the bathroom when I was actually capable of holding it, but several times I was not. Ohh God I felt like a baby, or maybe like an old and creepy guy that could not hold my own shit, something so basic that most part of the people do not realize how important is and usually make fun of those who make this sort of thing.

After all those episodes, I gave up and decided to get this “Rat cade” (Remicade). It seemed to work for a while but I never had a firm stool, I cannot complain saying that I had allergies or any bad side effects like most part of the people do, but I can’t say either that Remicade was doing its job properly.

One day I remembered when I was very young in Brazil, I used to take an orange powder whenever I had diarrhea, and as far as I can tell you, it was more than enough to control them.

The name of the powder is the famous “Metamucil”, but for colitis I thought it’d go on the wrong direction considering that it is a powder rich in fibers, something that would help constipation and not “running ass”.

I started with one spoon a day before bedtime and on the very next day I felt a big difference. My stool had some form and the so called “poop time” decreased dramatically.

Because I was still taking Remicade, the doctor told me that “Metamucil” was just giving some push, nothing major. And the “Remicade” was the real cause of my improvement. After six months with “Remicade” my GI doctor told me that there was a new study which was capable to prove if the “Remicade” was doing its job properly or not.

So I decided to try it, a nurse went to my house, collected my blood and a couple days later my GI doctor called me saying that my body was fighting back “Ramicade”, creating anti-bodies and the medicine was no longer effective.

I felt something different when he said that, and I asked him “What about if I just stick with “Metamucil” instead? He answered what everybody knows “Metamucil won’t bring any harm, but will not heal you either”!!! So he tried to give me symphony, I told him that I had to think and would contact his office once I decided.

Eddy’s Story:

So, I just wanted to say that I’ve been taking “Metamucil” one spoon a day for almost six months and I never ever had such a good quality of life like now.

I have one or two bowl movements a day, I can’t say that my stools are always firm, but my weight increased, I eat everything with no restrictions whatsoever, and I also take multivitamins and probiotics to give some extra help.

Now, I’m in Brazil and just came out of a colonoscopy, according to the results the majority of my colon is in remission, only a small part, some dots are still inflamed…but come on, I’ve been taking for a little bit more than 6 months, I look like a new person and feel brand new again.

The doctors have this idea about alternative medicines, and there’s nothing we can do about that to change. I remember when he told me, if you don’t go so much to the bathroom and you have some form on your stools, no blood and you’re gaining weight of course you are healing. That’s why I never gave up on “Metamucil” which was giving me that quality of life so expected.

As far I as I understand, please correct me if I’m wrong, “Metamucil” removes the excess of water from your intestines, reason why I pee more and poop less, that’s all I needed to heal my colon, even if it is little by little, but without strong drugs and insane diets.

We all know that some people react differently when dealing with drugs or alternative medicines, but one thing is true, I don’t neglect the real medicine but what exactly is the “real one”? as long as you feel better and find your path for the remission that’s what really matters. Don’t forget that If you don’t believe in yourself nobody will … if you don’t believe you can heal yourself you won’t, that’s the true.

We are our own doctors, nobody knows you better than yourself.

Wish you guys health and peace

God bless you all

Medications:

I started with the Mesalamine family, Remicade. Now I just take Metamucil, multivitamins and probiotics

written by Eddy

submitted in the colitis venting area




Metamucil

48 Responses to Remission with Metamucil

  1. Bev January 3, 2015 at 3:47 pm #

    OMG!

    Never a truer word spoken…we are our OWN doctors! Yes!! We HAVE to be. Until there is a complete natural way to CURE UC, this is the only way.

    The meds simply do not work at all, or only in the very short term. Each one of us HAS to be our own advocate and through trial and error HAS to find out what will work to manage UC NATURALLY.

    I don’t care what any doctor says…this is the truth.

    Great post!

    Cheers, and all the very best to you Eddy
    Bev

  2. Beth January 3, 2015 at 4:28 pm #

    I am new here and have been reading this site for the last few days because of dealing with a serious flare of uc. This is the first time I caught anything about taking soluble fiber on here… something I have been reading up on and wanting to start for myself in quieting my flare. There is a nutritionist, Karen Hurd, who pushes the soluble fiber (as in soup beans) for healing and continued health in the colon. I personally believe you are on to something that I have been very newly aware of although I’ve had uc for 14 yrs. Gives me courage to keep on!

  3. Mary S
    Mary January 3, 2015 at 9:43 pm #

    I give a lot of credit to my doctor for suggesting Metamucil. It was one of the first things he suggested for my uc along with Asacol and it has worked well. He said most people don’t realize that it bulks up the stool and can help with ulcerative colitis and ibs as well as constipation. My doctor said he takes it every day himself. It has also helped my husband who had issues with diarrhea but does not have uc.

    I take Metamucil, and Asacol, olive oil and follow a gluten free diet. I also limit my milk intake although I can eat hard cheeses without a problem. I do very well except sometimes when the seasons change or if I get sick or very stressed.

  4. Natalie January 3, 2015 at 10:08 pm #

    What a great story Eddy! As per Bev’s suggestion, I weaned myself off of Lialda and now take Astaxanthin, Ultimate Flora Probiotics and L-Glutamine. I have, for the most part, been in remission for over a year now. However, I think I am going to try the Metamucil in addition to what I am already taking.. My mom….God rest her soul….used to take Metamucil (for other intestinal problems) and it seemed to help her. Eddy, may you continue to have good luck with the Metamucil and thanks for your story.

    • Bev January 4, 2015 at 8:45 am #

      Hi Natalie!

      Happy holidays and all the best for 2015!!

      I am interested in this as well. I always thought that Metamucil was something that people with UC could not take safely. Like a constipant or something. I guess don’t really know what it is.

      If it helps to bind the stool and firm things up, but does not cause constipation, it might be a good thing?

      Please let me know how you do on it.

  5. Natalie January 4, 2015 at 8:50 am #

    I certainly will let you know Bev!

    Best wishes for a happy and HEALTHY New Year!!

  6. Bev January 4, 2015 at 9:21 am #

    You’re the best Natalie!

    I would really appreciate knowing what Metamucil can do for us, if anything at all.

    A firmer daily constitution can only be a good thing!

    :)

    • Haadi January 5, 2015 at 6:48 pm #

      Flaxseed powder works great as well. I mix a tablespoon in my oats every day. Just remember to refrigerate once opened.

  7. Natalie January 4, 2015 at 3:28 pm #

    Thank you Bev! You are the BEST too!!!! I have you to thank for being in remission. I was supposed to have a colonoscopy in 2013, but the GI doctor said I could hold off until 2014 because I was doing so well. Well, when it was time for it again this past October, the doctor said I can hold off another year!! How about that? I probably never would have been able to hold off 2 years if it wasn’t for you!!! I am so glad I took your advice Bev. God bless you!!

    Love ya!!!

  8. Bev January 4, 2015 at 4:16 pm #

    Awww…Natalie!

    You know, that does not surprise me about the colonoscopy thing. I myself have not had one for over two years now and do not plan to. I tend to believe that when we are doing well, that a colonoscopy can actually hurt things and stir things up. For some reason, I never do well after a colonoscopy. I think that it is a severely invasive procedure, especially for those of us with UC, and I think that the medical profession is starting to see that themselves. Perhaps they are backing off doing it routinely when we are doing well. I mean, why rock the boat?

    It’s a whole other story when we are not well…like, in a flare…then, you might as well have a colonoscopy because things have already gone wrong. To have one while I am perfectly fine? I don’t think so. Think of the so called ‘normal’ people, who don’t have UC or any bowel problems…they never go to the doctor to request a colonoscopy, do they? Only when they turn 50, when we are all SUPPOSED to have one. Makes you wonder.

    I think that in the future, there will be a much better, less invasive procedure. I really don’t think that they are good for any colon.

  9. Natalie January 4, 2015 at 7:44 pm #

    OMG Bev…..I feel EXACTLY the same way as you do. I have been telling my friends and family that I thought a colonoscopy would trigger a flare. I had asked the secretary at the GI’s office about that and she said that it wasn’t necessarily true. She said they never had a case like that! BS! I don’t believe that at all. Of course, it’s going to stir things up. The reason I called my GI in the first place was because a friend of mine called me a couple of months ago and told me that her husband had to be rushed to the ER. She said he was experiencing severe stomach pains and wasn’t able to move his bowels. This guy never went to a doctor and never had any health problems. He is the same age as I am (late 60’s). They admitted him, ran tests and found out that he had a bowel obstruction AND colon cancer. So, I guess that pretty much scared me and I called my doctor. I really don’t want a colonoscopy next year either, but I just may do it. I have had some slight bleeding lately…..don’t know if it’s my hemorrhoids or because of the UC. I haven’t taken the L-Glutamine faithfully and had some. Since taking it, I don’t see any blood. Like I said…..it was slight…..on toilet paper only. Do you ever get slight bleeding? Other than that, I am doing GREAT. I can eat almost anything and everything. I still consider myself in remission. Like I saidf…..it could possibly be the hemorrhoids. When I told a friend of mine (who has Crohn’s) about delaying the colonoscopy, she said I really should have it done because I could have fissures which she has. So now, she’s got me thinking again. Well, I have 9 months to think about it!

    • Bev January 5, 2015 at 6:32 am #

      You know Natalie, for the longest time, I did see slight blood. It never seemed to be completely gone away. However, for the past few months, there has not been any! I never deviate from anything that I take and never miss a dose of anything. I did not get a flu shot this year, which I finally figured out always led to a flare, and I never drink any alcohol or take anything like advil. I have never been so ‘good’, so perhaps finally, that is why I never see blood.

      I am like a good little girl, always doing what I know that I have to! Lol…you may be doing nothing wrong at all, and the slight blood could actually be from a hemmorhoid or a tear or something. We are so used to seeing ‘red’ that we usually assume that it HAS to be UC-related. It might not be.

  10. Haadi January 5, 2015 at 12:39 am #

    Good on you Eddy for finding what works for you!

  11. lisa January 5, 2015 at 11:28 am #

    This is my first flar- up. I am very new to all of this. I am very nervous and looking for as many answers as possible. I just got home from hospital two days ago, my husband took me after major stomach pain, fever and diarrhea . Doctor said I had colitis from testing and CT scan. And was to later see primary Dr. about colon testing. Was sent home with antibiotic pain meds and diarrhea med. I was on liquid diet and now having cream of wheat, steam rice….. all blan foods. What else can I be doing? Can I be taking this Metamucil too? What vitamins you all recommend?

  12. Haadi January 5, 2015 at 5:39 pm #

    Lisa, a couple of things you could try to begin with:

    chicken broth, food diary, a mostly gluten free diet, and most importantly l-glutamine and probiotics.

    I have had great luck with olive leaf extract and bee propolis (not suggested if allergic to bee products) as well.

    One step at a time, listen to your body and eat accordingly.

    Extra vit D supplement every day, and something like the SCD multivitamin not to mention SCD digestive enzymes. Psyllium seed powder is a great fibre supplement. No sugar. I have had luck on the Low Fodmap diet with some changes.

  13. Natalie January 5, 2015 at 9:19 pm #

    That’s great news Bev! I hope you CONTINUE to feel so good. Sometimes I forget to take my Probiotics. I do take them most of the time though. I really don’t think missing a dose now and then would cause the bleeding. It is probably either a hemorrhoid or something I ate. I do, however, wish I didn’t see ANY blood.

    • Bev January 5, 2015 at 10:43 pm #

      That’s right Natalie…I don’t think missing one pill will really do anything either. It is probably like you said, something you either ate or something that you took by mistake.

  14. Katy January 6, 2015 at 11:34 am #

    Thank you for posting this…I have read several people have had great results with Metamucil. I am going to add it back in. I am soooo wanting off Remicade, the cost
    and the risk involved bother me so much. Starting a new year with a deductible again is not something I can keep doing. So glad for your results. So you’re med free???

    • Eddy S
      Eddy January 6, 2015 at 12:01 pm #

      Hi Katy,

      As far as I can tell you I’ve been taking only
      probiotics and multivitamins along with Metamucil.
      According to my doctor I can take Metamucil up to 3x a day, but I’m very satisfied with one spoon per day.
      What really drives me crazy is why the majority of the doctors do not tell us about something so basic and efficient such as Metamucil before giving us the strong stuff…

      • Katy January 11, 2015 at 12:54 pm #

        Thanks, Eddy. I am so happy for you. I have added it to my regimen. Am going to stop Remicade and do Paleo/SCD as best I can. Taking probiotics, fish oil
        and metamucil.

  15. Uma January 6, 2015 at 4:21 pm #

    Thank you for posting this. Glad that you are in remission and enjoying life. I would really like for my son to try this. So, when you say spoon is it Tea spoon or table spoon? Also, are the capsules as effective? And how many of those should you take?
    Thanks in advance.

  16. Bev January 7, 2015 at 9:33 am #

    May I please ask…I went to the store and looked at Metamucil…and it says that it is fiber but also a laxative….a laxative??

    How will that bind or make for a firmer stool?

    I wanted to add this to me daily regimen but I certainly do not want nor need a laxative. Can anyone tell me the scoop on Metamucil and why it is good for UC…please? I know that fiber is good, but I’m sort of on the fence about the possibility of a laxative.

    Thank you:)

  17. Natalie January 7, 2015 at 3:26 pm #

    Oh wow Bev! That sure sounds confusing. My mom took it because she was always constipated and it helped her. I read some info online (forum)….thought you would like to read it. Check out all the entries….especially the 3rd one. Here is the link:

    http://www.ibsgroup.org/forums/topic/159524-how-exactly-does-metamucil-work-did-it-work-for-me/

    Hope this helps!

    • Bev January 8, 2015 at 6:38 am #

      OMG Natalie…thank you!

      That was a wonderful forum and now I understand what Metamucil does!! I couldn’t make heads or tails out of it being a ‘laxative’, but it does not sound like it will have you jogging to the john or anything like that. I get now why it bulks up the stool.

      Hooray:)

      • Haadi January 8, 2015 at 6:51 am #

        Bev, while I heartily celebrate Eddy’s success, I’ve personally had bad luck with Metamucil. In my view psyllium seed powder is better than psyllium husk powder. Metamucil is sweetened psyllium husk powder. I also take a tablespoon of flax seed powder (refrigerated) in my organic whole grain oats with great success. UC is an incredibly individual disease. But your probiotic and lglutamine probably applies across the board.

        Once again very happy for Eddy for finding what works for him :).

        • Bev January 8, 2015 at 8:35 am #

          Thank you Haadi,

          I need this input. I don’t think that I will be adding Metamucil simply because I read that it can cause bloating. I already have enough of that…lol.

          Also, things are going so well in my remission with what I am already taking (the probiotic and L-glutamine), that there is really no reason other than firming up the stool, to take it.

          Thank you again for your experience. We all need to tell our experiences with different things, good, and or neutral. It helps others to find their own path!

          • Haadi January 8, 2015 at 10:30 am #

            Bev, have you tried digestive enzymes for bloating? I think they’re very important. They effectively cured my bloating. I tried the SCD Prozymes; one time got the Now Foods enzyme that gave me horrible nausea but some have had luck on it, went back on Prozymes. It also contains lactase. Unsalted butter, if one can tolerate butter, also works well to calm the stomach. I eat pineapple regularly as well.

            On firming up the stool, a safe fibre like psyllium seed powder, best taken with probiotics, produces butyrate, feeds the probiotic bacteria and also firms up the stool. However, it would prob give bloating as a side effect before one’s system adjusts.

          • Bev January 8, 2015 at 10:44 am #

            Wow! Thank you so much again, Haadi!

            You have a lot of knowledge that needs to be shared. I had no idea about all of these things:)

          • Haadi January 10, 2015 at 1:34 am #

            Bev we’re definitely our own best advocates in this life trial :). Learning new things, listening to others and sharing. The knowledge on ihaveuc has helped me greatly. Hope the bloating doesn’t bother you for long and you find its cause.

  18. Haadi January 8, 2015 at 7:10 am #

    An interesting discussion on psyllium: http://www.healingwell.com/community/default.aspx?f=38&m=2152224

    • Bev January 10, 2015 at 8:04 am #

      Thanks Haadi…I think I’ve been bloated since I was a baby!

      • Haadi January 11, 2015 at 3:56 am #

        Bev forgot to mention this earlier :). This might help: every day a little after dinner I make a blueberry kefir smoothie, can also do this with homemade lactose free yogurt. If you can tolerate or have tried blueberry I’d recommend this; some have not had a good reaction. I believe this is the main reason I’m having the best stools ever. Blueberry contains fibre and will do the job of psyllium. Incidentally I checked out that blueberry has a protective role against IBD and kefir/yogurt should help with bloating: http://www.sciencedaily.com/releases/2010/02/100208145055.htm

      • shelly in maine January 11, 2015 at 2:50 pm #

        hahahahaha..hi Bev…happy and healthy New Year! :-)
        yeah…if it ain’t broke! Oh yeah, don’t forget Maine Wild Blueberries are a super food! I buy them frozen and put I my Smoothies still. Anyway, Happy, Healthy 2015! :-) Shelly

        • shelly in maine January 11, 2015 at 2:51 pm #

          Bev, that was supposed to go with the bloated since a baby comment! Me too and then some!

          • Bev January 11, 2015 at 2:57 pm #

            Hah! Yes, that’s right Shelly…I’ve HAVE been bloated since the baby….LOLOLOLOLOLOL…

            It was always a plausible excuse…

          • Bev January 11, 2015 at 2:59 pm #

            Ooops..I doubled up on the I Haves!!

            I HAVE been bloated since the baby….100 years ago now:)

  19. Haadi January 8, 2015 at 10:38 am #

    Just to add: if things are going well why indeed change it :). Thanks for your experience even more. That’s how many of us found out about the success duo of l-glutamine and probiotics. Cheers!

    • Bev January 11, 2015 at 11:08 am #

      Thanks Haadi…actually a year or so ago, I was eating a tub of blueberries every other day and they were wonderful. I stopped for no other reason than they went up in price.

      I can definitely tolerate them. I should add them back in…they are so good for us in many ways…all of this bloating may have to do with ‘woman’ things as well…lol.

      • Haadi January 14, 2015 at 5:12 am #

        Bev and all those interested in natural treatments, there may be good news in a few years: http://www.xconomy.com/boston/2015/01/13/with-vedanta-deal-jj-marks-big-pharma-milestone-in-the-microbiome/

        Lots of research, even the Robogut project, might mean better treatment for UC. We may be entering a new phase, definitely hopeful.

        • Bev January 14, 2015 at 10:07 am #

          OMG!!!

          Hurry with this research and treatment PLEASE!!!

          Right, Haadi??

          This is the BEST news that I have heard on the UC horizon YET. Let’s hope that someone can fast track this…

          • Haadi January 14, 2015 at 11:49 pm #

            Right Bev.

            Big pharma too :). If they are investing millions, it’s got to be legit. Hoping this will be a game changer in the nature of “mainstream” IBD treatments as well.

          • Bev January 15, 2015 at 6:46 am #

            Can’t wait….literally.

  20. Bev January 8, 2015 at 10:41 am #

    Smiles…all smiles!!

    I agree…if it ain’t broke…don’t fix it…lol.

    Thanks Haadi :)

  21. Natalie January 8, 2015 at 2:33 pm #

    Glad reading the link I sent helped you to understand more about Metamucil. You know Bev……I think I am just going to keep taking what I’ve been taking and NOT take the Metamucil. Everyone’s systems are different and Metamucil will not work for everyone in the same way!! As long as I am in remission…..WHY ROCK THE BOAT!!:).

    • Bev January 8, 2015 at 3:06 pm #

      My sentiments exactly, Natalie. If I take it and it changes something for the bad, I will absolutely KICK myself!!

      I’m with you.

  22. david zahn December 13, 2015 at 4:28 am #

    eddy, good on you to believe in yourself and look for a different approach to healing. I have had colitis for three years now and have had prednisone, salzapyralin and the latest methotrexate.well all suppresses the immune system and are foreign to the body. I have tried a lot of different approaches to what to take, all trial and may be.i started to think of how Metamucil would work and I have had some good results in relief from wet stools.it makes good sense to take Metamucil .I have started and stopped on Metamucil how ever now it is time to take it again and keep on it ,there are so many reports on how it works and a lesser problem with the body.
    I think my colitis had started with stress ,it sure is responsible for so many problems .

    all good

  23. Mike December 20, 2015 at 9:07 am #

    I’ve had UC now for 7 years. Am in the military, it got so bad that I was hospitalized and dropped 40lbs. Normal weight of 175. What works for me, 3-4 table spoons of Metamucil before bed, pro biotic gummie bears from COSCO, and vaping nicotine 20milligram level. Symptom free!

    Most importantly do NOT EAT anything with splenda also known as sucralose. Sucralose is truly evil to those with IBS, Crones or UC!!!!!!!!! and no one is talking about it. Trust me, if you want to test this, eat a pack while in remission, you will flare up horribly and it will take forever to clear from your system. You see, splenda/sucralose is a type of chlorinated sugar, yes chlorinated, which is suppose to prevent your body from absorbing it and getting fat…(like with real sugar) with the idea that you will just pass it through (shit it out) of your body. However, it doesn’t just pass through your body, it sits in your gut being in-absorbable, destroying the PH balance of your intestines and causing flare ups. And no one is talking about it. Worse part is, everyone is putting that crap in everything now because they don’t want to get fat (fucking, idiots should just work out) look at half of the supplements at GNC…. They use freaking sucralose now… They are even using it as a sweet coating for a lot of pills now…. COME ON, who is going to get fat from taking freaking Advil, a little sugar isn’t going to kill you. Now half our products use the chlorinated sugar crap. Sorry, just really hate how evil sucralose is and how they are putting it in everything. You can’t take 5 hour energy anymore…. Uses sucralose instead of sugar. PS, sugar = sucrose and splenda = sucralose. Watch out!!!

  24. Lydia Clarke March 15, 2016 at 5:16 pm #

    Eddy,

    You are so awesome for sharing! So many people with UC feel so alone because the symptoms can be embarrassing to discuss or seem hopeless.

    I am so glad you shared your story with Metamucil! I haven’t found a drug that works for me and I have been in a bad flare since November, with the exception of a short period of time when I was taking Metamucil. When I visited my doctor for my 2 week check, the nurse freaked out when she saw Metamucil on my med list and told me to stop taking it immediately. At the time, I didn’t connect my remission with Metamucil. They were telling me it was prednisone that caused the remission. Of course that didn’t explain why it wasn’t working a week later (after I stopped the Metamucil). Here it is March and I am down by 36lbs, weak and sick of the snake oil my doctor is selling! Nothing works and biologics aren’t biological at all, they are light chemo with a user friendly name and I am sick of this.

    Then I found your post! Wow, this makes me feel so much better! Thank you so much, for the first time in months I feel empowered. Prayers for your continued health!

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