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Pregnant with UC, What Now?

I Have Ulcerative Colitis…

I am in my 7th week of pregnancy with my second child with active ulcerative colitis.

Is anyone out there currently in this situation?

I was on everything you could list for UC. Most recently I was on Humira and Imuran. Zofran for nausea and Bentyl for spasms. Nothing worked. I was considering surgery when I found out I was pregnant the morning of the meeting with the surgeon.

Submitted by Jen in the Colitis Venting Area

 

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3 Responses to Pregnant with UC, What Now?

  1. Megan August 24, 2011 at 8:47 pm #

    I was diagnosed when I was 20 weeks pregnant with UC. I was put on prednisone and colozal for the remainder of my pregnancy. I also had to have a PICC line put in for nutrition for me and the baby. I hooked up to a machine for 12 hours a day…..I did it at night while I slept. I delivered a happy health baby boy at 36.5 weeks who weighed 8 lbs 10 oz. The minute her was born I had immediate relief from the UC for 8 months. Then colozal was able to control it for the next 7 years.

    Now I’m on remicade infusions. Seems to be working now.

    I pray that you and your baby find relief soon. Try colossal. Good luck.

  2. Megan August 24, 2011 at 8:48 pm #

    Sorry auto correct got me. Not colossal. Colozal.

  3. Brittany September 30, 2011 at 6:30 am #

    I got diagnosed with UC (last 15 cm of colon diseased) in Dec 2007, 3 months after the birth of my first child. I tried Asacol, Lialda, Prednisone, Cort Enemas, Canasa, nothing worked. I continued with the flare, with pretty bad symptoms, until July 2008. We didn’t plan, but got pregnant. Shortly after I got pregnant, during the first trimester, all symptoms went away, except I had was massive rectal bleeding, which was constantly monitored by my OB and GI. I got blood levels tested every 3-4 weeks. Throughout the pregnancy I took Asacol and had horrible side effects from it, hives, swelling, stomach pain, ect. It was determined that I was having a hypersensitive reaction to the Asacol. My baby was born 2 weeks early, but healthy. She is now 2 1/2 and has no related problems from me having UC. By my 6 week check-up I was symptom free for the first time since I was diagnosed. For the next 2 years I had no UC symptoms or problems. I didn’t change my diet, I didn’t alter anything, I just stopped having symptoms. May of this year I decided to try birth control for the first time in 5 years and within the first week of starting it, ALL of my UC symptoms came back and I have been struggling to get this flare under control ever since.

    My advice, for what it’s worth, is to be constantly monitored by your GI and OB. My OB would get my blood levels and send them to my GI and they would exchange info as necessary. Really consider the risks of any medication you may go on. To me, having symptoms was way better than risking the health of my baby. I also got involved in the following study….
    http://www.ccfa.org/trials/?rm=display_trial&center_id=1802&doAnchors=1

    Good luck!!

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