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Pregnant with UC + No Remicade = Flare-Up, Now what?

Hi,

It has been almost 6 years struggling with Ulcerative Colitis when just recently Remicade helped HOWEVER……….
I am 11 weeks pregnant with my third child. I have a 4 year old boy and a 2 year old boy and soon to have a newborn again. The first pregnancy I did not know I had UC until after the baby was born. The second time around I was somewhat under control. I recently started Remicade a few months ago or so……….it has helped me greatly. However my husband and I agreed that it would be best not to continue the Remicade while I am pregnant. Not so sure if they know about the side effects. If you can’t barely take a Tylenol while pregnant how can you inject yourself with medicine and that be O.K.? So, I am sacrificing for now……….I am also taking Lialda. I had stopped about a week ago (which I should never have done) and since I stopped the Lialda, the blodd and trips to the bathroom started up again. I am back on the Lialda however I am not so sure it will reverse the symptoms to get back to where I was. Things were going well just on the Lialda and not the Remicade in the se 10 weeks.

My questions are does anyone have any alternative remedies you can suggest while I am going through the pregnancy that can help? I do plan on going back to Remicade after the baby is born, therefore I will not be nursing either :(
I am only taking Pre-Natal vitamins and Lialda.

Thank you!

-Nikki




pregnant

6 Responses to Pregnant with UC + No Remicade = Flare-Up, Now what?

  1. Michelle February 22, 2011 at 6:36 pm #

    Hi Nikki,
    I’m so sorry to hear of your situation, although I will say that it mirrors mine in a lot of ways. I didn’t find out I had uc until after the birth of my first, in remission through my second and awful flare during and after my third pregnancy. What got me through my third pregnancy was prednisone. I know it sounds bad, but I had a very healthy and happy baby boy (he’s now almost 2). I was at 60 mg for almost 2months b4 he was born. He did arrive a month early but he was 8lbs, so I’d say he was cooked! :)

    I wish you the best. Let me know if you need to chat. Trust me I completely understand, it stinks having 2 little ones (btw my other ones were 3 1/2 and 1 1/2 when my third was born) and trying to go through a flare AND having a third child….its not easy.

    I’m here if you need me.
    Michelle

  2. Dawn February 22, 2011 at 7:56 pm #

    Nikki: Please talk to your GI right away. An untreated flare is worse and more dangerous for your baby than the medication. I know it’s scary, but I took Lialda throughout my second pregnancy and ended up needing a course of Prednisone during my early third trimester and my six month old boy is perfect in every way. I didn’t want to take the steroids, but my GI was straight with me and told me if the flare got too bad I would likely go into preterm labor and risk losing my baby. Please don’t take any chances. Talk to your doctor ASAP, they will do their best to help you in the safest way possible.

  3. SashA February 28, 2011 at 12:16 am #

    I was on 60 mg of prednisone the last six months of my pregnancy. (not ideal). Baby was born onetime and at a braiding weight. He’s now a year old and very strong. We joke that it’s the “roids”. I wouldn’t be nervous about using them. It’s when prednisone stops working is when you have a problem which is what happened to me after the birth.

    I’m now on remicade but found out I have built up antibodies towards it so there aren’t many options left for me.

  4. Samantha December 7, 2011 at 9:50 am #

    I know this is an old post, but for anyone else seaching this topic I’ve been confidently told by my GI, as well as research I’ve done that Remicade is relatively safe during pregnancy and is rated a class B drug (along side Tylenol). As well, remicade can not be absorbed through the digestive system (which is why we infuse it and can’t take tablets or a liquid) so brest feeding is safe while on remicade.

    I plan on trying to have a baby sometime in the next year or so and unless studies show it’s safe for me to get off remicade during pregnancy and start again afterwards without any adverse effects I will be staying on remi during my pregnancy with every confidence that I will have a healthy child.

    • Melissa February 7, 2012 at 9:08 pm #

      I have a healthy 1 year old. I was on Remicade through my pregnancy. I was terrified of it, but I had flared badly through my first pregnancy and my oldest son was premature. I would have to agree that an untreated flare is worse than medication.

      • Erica January 20, 2014 at 3:31 am #

        Melissa, I know this is an old post, however I’m thinking of trying to get pregnant with our second child and I’m also on Remicade. How was your pregnancy? Was it pretty
        “normal” considering the remicade? I know everyone is different, but it’s hard to find someone to talk to about this stuff ya know!? Lol!

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