I was diagnosed in August of 2010 at age 59, after almost four weeks of suffering through the symptoms which included weight loss. I finally got a doctor to arrange the colonoscopy otherwise I’m sure I would have ended up in the ER. After the diagnosis I started the 6 week prednisone treatment then switched to Lialda, 4 pills per day. I experienced some hair loss at first but that corrected itself. Now I am on 2 pills (1.2gm) per day and have remained in remission.
Some more about me:
I love the outdoors and like to remain active, hiking, biking, gardening, etc. I work as an office mgr in a business and in the school district with special needs students whenever I can.
I have been in remission but find I continue to need more time in the morning for the bathroom, averaging about 2 bowel movements per day.
Possible Side Effects – Bone Loss?
My question is if anyone has suffered bone loss as a result either of the meds or the UC itself? I have been on a biophosphate for the bones during the last 3.5 years since diagnosis and taking Lialda – bone scan just continues to get worse. Could there be a problem with absorption due to UC? Also, cholesteral went up. One more issue that I have currently been reading about is the increase risk of developing blood clots for people with UC. Unfortunately, I have had another medical issue come up that will necessitate taking yet another drug, making it more important to try and understand the effects of UC on our bodies as well as the Lialda.
I have taken VSL#3 probiotic as well and am curious what other herbal, vitamin or dietary supplements other people are taking that is helping.
Welcome any comments that anyoone may have about these possible issues – thank you!
written by Dinda
submitted in the colitis venting area