Comments on: Pity Party http://www.ihaveuc.com/pity-party/ Sat, 04 Feb 2012 17:59:00 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: Vicki Thomashttp://www.ihaveuc.com/pity-party/comment-page-1/#comment-1067 Vicki Thomas Mon, 02 Aug 2010 13:30:25 +0000 http://www.ihaveuc.com/?p=1341#comment-1067 Thanks so much for the words of support and encouragement. It really helps to be reminded that I'm not the only one who has these feelings at times. It is amazing what the power of words can do to help. Keep on keeping on and we'll all get through these rough times. Thanks so much for the words of support and encouragement. It really helps to be reminded that I’m not the only one who has these feelings at times. It is amazing what the power of words can do to help. Keep on keeping on and we’ll all get through these rough times.

]]> By: Laura Italyhttp://www.ihaveuc.com/pity-party/comment-page-1/#comment-1065 Laura Italy Mon, 02 Aug 2010 11:14:44 +0000 http://www.ihaveuc.com/?p=1341#comment-1065 Yes, pity party on Friday I had....iron very low, they wanted to send me to hospital, but I said no..but moments of feeling very depressed, and sad...thanks for sharing, when i read it on Friday I felt less lonely!! XX Laura Yes, pity party on Friday I had….iron very low, they wanted to send me to hospital, but I said no..but moments of feeling very depressed, and sad…thanks for sharing, when i read it on Friday I felt less lonely!!

XX

Laura

]]> By: Michellehttp://www.ihaveuc.com/pity-party/comment-page-1/#comment-1052 Michelle Fri, 30 Jul 2010 13:46:43 +0000 http://www.ihaveuc.com/?p=1341#comment-1052 Hi Vicki, I'm there with ya sista. I've been in a flare since beginning of June, in and out of the hospital, iv steroids, remicade...the whole bit! I am home now after 20 days in the hospital, with my husband and 3 young children and I'm feeling very crappy. Its hard to find the energy. Hang in there...it will all work out. You will be back on your bike in no time!!!! Best of luck to you. Michelle Hi Vicki,
I’m there with ya sista. I’ve been in a flare since beginning of June, in and out of the hospital, iv steroids, remicade…the whole bit! I am home now after 20 days in the hospital, with my husband and 3 young children and I’m feeling very crappy. Its hard to find the energy. Hang in there…it will all work out. You will be back on your bike in no time!!!!
Best of luck to you.
Michelle

]]> By: Vicki Thomashttp://www.ihaveuc.com/pity-party/comment-page-1/#comment-1051 Vicki Thomas Fri, 30 Jul 2010 12:25:34 +0000 http://www.ihaveuc.com/?p=1341#comment-1051 Thanks so much for the feedback. I really do appreciate it. I suppose like anything ulcerative colitis brings with it highs and lows. Having a better day today and I'm working myself out of my funk. Realized at the end of the day yesterday that I had let the disease control me rather than the other way around... When this happens it is easy to forget the good stuff and just feel broken. Nick, wow - I really hope you feel better soon. I agree traveling and getting out in the world are musts before settling down. I know a few people have posted on various personal uc blogs about traveling while in a flare. Might be worth reading these posts if even for some inspiration? My thoughts are with you and I hope you can get out and do the things you want. Thanks again for the responses. Admittedly I was a bit nervous posting such a "not-so-positive" post. cheers, vicki http://ottawa.cx Thanks so much for the feedback. I really do appreciate it. I suppose like anything ulcerative colitis brings with it highs and lows. Having a better day today and I’m working myself out of my funk. Realized at the end of the day yesterday that I had let the disease control me rather than the other way around… When this happens it is easy to forget the good stuff and just feel broken.
Nick, wow – I really hope you feel better soon. I agree traveling and getting out in the world are musts before settling down. I know a few people have posted on various personal uc blogs about traveling while in a flare. Might be worth reading these posts if even for some inspiration? My thoughts are with you and I hope you can get out and do the things you want.
Thanks again for the responses. Admittedly I was a bit nervous posting such a “not-so-positive” post.
cheers,
vicki
http://ottawa.cx

]]> By: Nickhttp://www.ihaveuc.com/pity-party/comment-page-1/#comment-1050 Nick Fri, 30 Jul 2010 11:21:41 +0000 http://www.ihaveuc.com/?p=1341#comment-1050 I know exactly how you feel vicki. My flare up seems to have lasted the best part of 18 months now broken only by a few weeks of remission. All my meds have been increased and im definetely feeling the side effects of the steroids. Fortunetely no moon cheeks this time but bad insomnnia and sore gums. My biggest moan is that I have just graduated university and after 4 years of hard graft gaining a masters degree I want so badly to save up and go travelling before embarking on a career but colitis has is currently stopping me from doing this. I simply cant uproot and live out of a bag for months on end like my friends can simply because of the army of meds i need and the time spent on the loo. Im really hoping my current diet combined with the meds will see an improvement but I know its going to take time and its thoroughly depressing. Iv cut out gluten, wheat, yeast, lactose and alcohol and im beginning to see improvement (less D, no blood) so fingers crossed im on the mend. Hope you see the positive side of life again soon, your not alone I know exactly how you feel vicki. My flare up seems to have lasted the best part of 18 months now broken only by a few weeks of remission. All my meds have been increased and im definetely feeling the side effects of the steroids. Fortunetely no moon cheeks this time but bad insomnnia and sore gums.

My biggest moan is that I have just graduated university and after 4 years of hard graft gaining a masters degree I want so badly to save up and go travelling before embarking on a career but colitis has is currently stopping me from doing this. I simply cant uproot and live out of a bag for months on end like my friends can simply because of the army of meds i need and the time spent on the loo.

Im really hoping my current diet combined with the meds will see an improvement but I know its going to take time and its thoroughly depressing. Iv cut out gluten, wheat, yeast, lactose and alcohol and im beginning to see improvement (less D, no blood) so fingers crossed im on the mend.

Hope you see the positive side of life again soon, your not alone

]]> By: Milkahttp://www.ihaveuc.com/pity-party/comment-page-1/#comment-1049 Milka Thu, 29 Jul 2010 21:15:09 +0000 http://www.ihaveuc.com/?p=1341#comment-1049 It is ok to have a pity party...I think we can all join in at one time or another. I hope your steroids kick in and work for you very soon....keep strong! It is ok to have a pity party…I think we can all join in at one time or another.
I hope your steroids kick in and work for you very soon….keep strong!

]]> By: Jessicahttp://www.ihaveuc.com/pity-party/comment-page-1/#comment-1048 Jessica Thu, 29 Jul 2010 19:59:04 +0000 http://www.ihaveuc.com/?p=1341#comment-1048 Hang in there.. You are allowed to complain! UC SUCKS! :( I hope you start feeling better soon! Have you felt any side effects from the steroid use? Hang in there.. You are allowed to complain! UC SUCKS! :(
I hope you start feeling better soon!
Have you felt any side effects from the steroid use?

]]> By: Barbarahttp://www.ihaveuc.com/pity-party/comment-page-1/#comment-1047 Barbara Thu, 29 Jul 2010 14:45:17 +0000 http://www.ihaveuc.com/?p=1341#comment-1047 I SO know how you are feeling right now! I am also, I think, sliding out of a remission period, feeling the flareup starting again, and just sick and tired of feeling so awful, every day, with what seems like no end in site. There are days when I say to myself, "Is this what my life is going to be like, from now on?" and I cry. We're entitled to those days, I think. We're dealing with something huge, something much more difficult than most people realise, and we ARE only human. As long as those days don't beat us down permanently, it's all right. Hang in there. I SO know how you are feeling right now! I am also, I think, sliding out of a remission period, feeling the flareup starting again, and just sick and tired of feeling so awful, every day, with what seems like no end in site. There are days when I say to myself, “Is this what my life is going to be like, from now on?” and I cry.

We’re entitled to those days, I think. We’re dealing with something huge, something much more difficult than most people realise, and we ARE only human. As long as those days don’t beat us down permanently, it’s all right. Hang in there.

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